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Publication
Including digital sequence data in the Nagoya protocol can promote data sharing
Trends in Biotechnology -
Publication
International summit on proteomics data release and sharing policy
Journal of Proteome ResearchDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Data sharing in the age of predictive psychiatry: An adolescent perspective
Evidence-Based Mental Health -
Video
ELSIcon2024: Nothing About Us Without Us: Sharing Relevant Results with Communities that Provide Genomic Data
ELSIcon2024 • Paper • June 11, 2024 Authors: Speaker: Sarah LeBaron von Baeyer, PhD (she/her/hers) – Variant Bio Amidst the din of debate in ethical conduct of genomic research…- ELSIcon2024
- 6th ELSI Congress
- Community Engagement
- equity and justice in genetics
- Return of results and incidental findings
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Additional Funding Resource
NIH RePORTER
A searchable database of all current and previously funded NIH grants, across all institutes, programs, and grant types. -
Grant Abstract
Beyond Data Security: Promoting Confidentiality and Advancing Science
A range of potential solutions has been proposed to the confidentiality challenges in genome research and how best to proceed in this era of "big data" is not known. Some advocate measures… -
Publication
Data sharing considerations to maximize the use of pathogen biological and genomics resources data for public health
Journal of Applied Microbiology -
Publication
Data sharing considerations to maximise use of pathogen biological and genomics resources data for public health
Journal of Applied Microbiology -
Additional Resource
Data Security Toolkit, Global Alliance for Genomics and Health (GA4GH)
The Data Security Toolkit produced by the Global Alliance for Genomics and Health (GA4GH) offers ready-to-use data security guidelines for genomic data sharing.- GA4GH
- policy-framing
- genomic data
- Human Rights
- genomic data sharing