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Grant Abstract
African American Community Review of Genetic Research
This is a qualitative, ethnographic study that is designed to generate a number of empirical examples of community review in action. Project investigators have established a working relationship with…- African American
- Clinical Research
- community
- culture
- Ethnic group
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Job Posting
Research Coordinator I - ELSI
With interests in bioethics, social science, health policy, public health, epidemiology, or related field to work on an NIH-funded study examining the social, clinical, and ethical implications of…- ELSI
- Administrator
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Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT SUMMARY/ABSTRACT Substantial resources have been devoted to policy evaluation of clinical genomic sequencing that hinge on the conceptualization and measurement of utility. However, most… -
Video
Genomic Imaginaries: Sparking Dialogue between ELSI and Literary Studies
ELSI Friday Forum • February 11, 2022 As long as genetics research has been pursued, authors within and outside of the scientific establishment have crafted narratives to make sense of…- Humanities
- Post-genomics
- Literature and genetics
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Grant Abstract
Interactive ELSI Curriculum for Primary Care Residents
We propose to develop, implement, and evaluate a web-based curriculum on the ELSI related to genetics for primary care residents in internal medicine and pediatrics. Over three years, we will build a…- Clinical Research
- computer assisted instruction
- culture
- curriculum
- Decision Making
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Video
ELSI Friday Forum: Biobanking in the Era of COVID
Biobanking is a crucial element of the medical and public health response to COVID-19 and future pandemics, as the storage and distribution of biospecimens and data become a driver of current and…- Biobanking
- Covid genomics
- Biobank Ethics
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News
Finale Meeting of the NHGRI Centers of Excellence in Ethical, Legal and Social Implications (ELSI) Research (CEER) Program
The Centers for Excellence in ELSI Research (CEER) Program, a set of research centers across the United States funded by the National Human Genome Research Institute (NHGRI) to promote interaction…- CEER
- NHGRI
- Trainees
- relationship building
- embedded ELSI
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Grant Abstract
Center for Transdisciplinary ELSI Research in Translational Genomics
Harvesting the benefits of genomics requires a new kind of transdisciplinary cooperation. Over the next three years, we will create the Center for Transdisciplinary ELSI Research in Translational…- Adult
- Advisory Committees
- Affect
- Aging
- base
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Publication
ELSI 1990-1995: A review of the ethical, legal, and social implications research program and related activities
National Center for Human Genome ResearchDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
ELSI Presentations at ASBH 2024
The following is a list of ELSI and ELSI-related sessions at ASBH 2024. Please email us at [email protected] if you would like to add your presentation. Thursday, September 19, 2024 9:15…