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News
Albert R. Jonsen, PhD (1931-2020) Foundational Scholar of Bioethics
Albert R. Jonsen, PhD (1931-2020), a foundational figure and scholar in bioethics, died at his home in San Francisco on October 21, 2020. His extraordinary contributions to the field of…- Al Jonsen
- Bioethics History
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Additional Resource
Consensus Study Report, Understanding Racial and Ethnic Differences in Health in Late Life: Research Agenda, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2004)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on health differentials by race and ethnicity. It outlines the findings, conclusions, and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Workshop Proceedings, An International Perspective on Advancing Technologies and Strategies for Managing Dual-Use Risks, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2005)
This National Academies Press publication summarizes the proceedings of a workshop that explored global technological landscape in the life sciences. The workshop was convened by The Committee on…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Symposium Proceedings, The Role of Scientific and Technical Data and Information in the Public Domain, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2003)
This National Academies Press publication summarizes the proceedings of a symposium that explored the value and limits of making scientific and technical data and information (STI) available in the…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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News
EFF Resources - Building Infrastructures to Enhance Community Engagement Work
Session Title: Building Infrastructures to Enhance Community Engagement Work Date and time: Friday, February 14, 2025 | 12pm ET US / 9am PT US Moderator: Heini Natri, PhD Presenters: Ishita Das… -
Publication
Recruitment and informed consent for experimental gene therapy trials when new FDA-approved treatments are not widely available
The American Journal of Bioethics -
Additional Resource
Consensus Study Report, Putting People on the Map: Protecting Confidentiality with Linked Social-Spatial Data, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2007)
This National Academies Press publication documents the evidence-based consensus of a committee of experts on confidentiality and spatial information linked to social and behavioral data. It outlines…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Genetic/genomic testing: Defining the parameters for ethical, legal and social implications (ELSI)
BMC Medical Ethics -
Publication
GeneLiFT: A novel test to facilitate rapid screening of genetic literacy in a diverse population undergoing genetic testing
Journal of Genetic Counseling