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News
ELSI in Review • April 2022
About this listing ELSI in Review is a listing of recently published, systematic reviews of the literature on key ELSI topics curated by CERA staff. Our April 2022 set explores carrier screening,… -
News
New: Publication Opportunities
CERA has expanded our partnership with The American Journal of Bioethics (AJOB) and entered new partnerships with Genetics in Medicine (GiM) and The American Journal of Human Genetics (AJHG) to offer… -
Video
ELSIcon2022 Paper: Sharing Qualitative Research Data: Addressing the Ethical and Logistical Challenges
ELSIcon2022 • Paper • June 1, 2022 James DuBois, Jessica Mozersky Qualitative data sharing (QDS) promises several benefits: enabling secondary analyses to extend project findings at low cost…- Live
- Paper
- Reflections on the ELSI field
- Methodology and study design
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Video
ELSIcon2022 Paper: Translating Genomic Science: How Genetic Counselors Navigate Ethical and Professional Dilemmas in the 21st Century
ELSIcon2022 • Paper • June 2, 2022 Susan Markens With the acceleration of new genetic discoveries and testing techniques in the first decades of the twenty-first century, genomic technologies…- Live
- Paper
- Genetic Counseling
- Genetic testing and screening
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Grant Abstract
National Information Resource on Ethics and Human Genetics (III)
The National Information Resource on Ethics & Human Genetics (NIREHG), in cooperation with the National Reference Center for Bioethics Literature (NRCBL, funded by a contract with the National…- behavioral /social science research tag
- Catalogs
- Data Collection
- Ethics
- Genetic Screening
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Grant Abstract
National Black Leadership Conference on Genetics
The National Black Leadership Conference on Genetics will bring together thought, civic, and elected leaders from the black community to learn about human genetics, new developments in genetic…- African American
- meeting /conference /symposium
- Molecular Genetics
- Population Genetics
- Travel
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Publication
Genes and race in the news: A test of competing theories of news coverage
Am J Health Behav -
Additional Resource
Workshop Proceedings, Ethics Education and Scientific and Engineering Research: What's Been Learned? What Should Be Done?, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2009)
This National Academy of Engineering publication summarizes the proceedings of a workshop called "Ethics Education and Scientific and Engineering Research: What's Been Learned? What Should…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, 2008 Amendments to the National Academies' Guidelines for Human Embryonic Stem Cell Research, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2008)
This National Academies Press publication updates the 2005 report titled Guidelines for Human Embryonic Stem Cell Research. This revision to the set of ethical standards for the field of stem cell…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding