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Grant Abstract
From Specimen to Biobank: Using an Organizational Perspective to Study ELSI Issue
This research project will collect and analyze qualitative and quantitative data about US biobanks, exploring how organizational strategies, features, and attributes affect both framing and response…- Administrator
- Adopted
- Adoption
- Affect
- Area
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Video
ELSIcon2022 Panel: Permeable Membranes: How the blurring of boundaries and merging of silos should reshape ELSI research
ELSIcon2022 • Panel Session 7 • June 1, 2022 Brian Hutler, Debra Matthews, Rebecca Wilbanks Advancing understanding of the mechanisms of disease point to a growing number of examples of '…- Live
- Panel
- Reflections on the ELSI field
- precision medicine
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Video
May 2025 ELSI Journal Club: Parents’ perceptions of the utility of genetic testing in the NICU
Featured Article: Callahan, KP., Mueller, R., Joffe, S., Skraban C, Spinner, NB., Crew, K., Clapp, J., Munson, D., Feudtner, C. Parents' perceptions of the utility of genetic testing in the NICU. (… -
Video
ELSIcon2022 Paper: Shining a light on overlooked questions in ELSI genomics
ELSIcon2022 • Paper • May 27, 2022 Ainsley Newson The rapid mainstreaming of clinical genomics and an ever-expanding global genomics research agenda have given rise to a large body of scholarship…- Reflections on the ELSI field
- Genetic testing and screening
- Paper
- Pre-Recorded
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Publication
The ELSI hypothesis
IsisDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Collection
Empirical Evaluation of Arts-Based Informational Aids for ELSI Issues in the Clinic and Beyond
The rapidly changing science of clinical genetics and the complexity of its associated ethical, legal, and social (ELSI) issues call for novel approaches to information delivery and education of…- Genetics education
- popular culture
- science education
- Arts
- Informational aids
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Publication
Applying an ELSI lens to real-world data and novel genomic insights for personalized mental healthcare
Frontiers in Genetics -
Publication
Ethical, legal, and social issues in the Earth BioGenome Project
PNASMembers of the Earth BioGenome Project's Ethical, Legal, and Social Issues (ELSI) Committee describe the issues for this large-scale genomic sequencing project and their plans to provide guidance. -
Publication
What research ethics should learn from genomics and society research: Lessons from the ELSI Congress of 2011
J Law Med Ethics