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2001 - 2010 of 3998 Topics
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Publication
Medicaid coverage practices for approved gene and cell therapies: Existing barriers and proposed policy solutions
Molecular Therapy - Methods & Clinical DevelopmentAllen and colleagues describe how discrepancies between the legal requirement to cover all FDA-approved drugs according to their medically accepted indications and the coverage policies of 16… -
Publication
Literacy-adapted, electronic family history assessment for genetics referral in primary care: Patient user insights from qualitative interviews
Hered Cancer Clin PractClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG007292, U24HG007307, U01HG007292, R01CA132829, T32 GM007748, U01HG007292, U24HG007307, R01CA132829,… -
Video
Exploring Complexity in the Biology Classroom: Beyond Mendel: Leading with Complexity when Teaching Human Genetics
Date: May 11 2023 3-4 pm PT / 6-7 pm ET Teaching Mendelian patterns of inheritance is a useful way to introduce basic genetic concepts in the classroom. However, this framework can be unhelpful or…- biology education
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Publication
Aspiring toward equitable benefits from genomic advances to individuals of ancestrally diverse backgrounds
The American Journal of Human GeneticsWang and colleagues evaluate accessibility and representativeness for ancestrally diverse individuals for two applications of genetic testing—reproductive genomics and precision oncology—and propose… -
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Collection
Dataveillance and Human Rights
Nearly 75 years ago, countries agreed to an International Bill of Human Rights, that included, among other fundamental rights, a right to privacy, a right to science, and a right to health. Cohesive…- data privacy
- data justice
- public health surveillance
- HIPAA
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Grant Abstract
The Mouse as a Paradigm
No single research tool has played a more significant role in genetics and genomics research and development than the genetically engineered research mouse, so it is not surprising that no other…- Clinical Research
- community
- experience
- genetically modified animals
- Genetics
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Publication
Equity and timeliness as factors in the effectiveness of an ethical prenatal sequencing service: Reflections from parents and professionals
European Journal of Human Genetics -
Publication
Genomic sequencing: The case for equity of care in the era of personalized medicine
Pediatric Research -
Publication
Streamlining the ethical-legal governance of cross-border health data sharing during global health emergencies
Research Ethics