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2021 - 2030 of 4334 Topics
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Publication
Allocation of resources to communication of research result summaries
J Empir Res Hum Res EthicsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1U01HG006507, 1U01HG008657, P50 HG003374-06 -
Grant Abstract
Assessing Risk Communication Educational Practices in Genetic Counseling Programs
Genetic susceptibility testing for common diseases will become widespread soon and form an integral component of evidence-based medicine and health care delivery. With advances in personalized risk…- Alleles
- Anxiety
- Area
- Behavior
- Behavioral Genetics
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Publication
Immortal data: A qualitative exploration of patients’ understandings of genomic data
European Journal of Human GeneticsLyle and colleagues analyze how patients and their relatives conceptualize the “immortality” of genomic data. They find that participants focus on the simplicity of providing a sample instead of the… -
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Publication
Northwest Indigenous art and the inspiring spirits
American Journal of Medical Genetics Part C: Seminars in Medical Genetics -
Video
Racial Politics and Health Equity in Genome-Editing Therapeutics
ELSIcon2024 • Paper • June 12, 2024 Authors: Co-author: Santiago J. Molina, PhD (he/they) - Northwestern University Speaker: Melissa Creary, PhD, MPH This paper examines the…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Gene therapies and gene editing
- Use of race, ethnicity, and ancestry categories
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Video
ELSIcon2024: Racial Politics and Health Equity in Genome-Editing Therapeutics
ELSIcon2024 • Paper • June 12, 2024 Authors: Co-author: Santiago J. Molina, PhD (he/they) - Northwestern University Speaker: Melissa Creary, PhD, MPH This paper examines the…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Gene therapies and gene editing
- Use of race, ethnicity, and ancestry categories
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Video
ELSI of implementing clinical genetic testing in kidney disease and transplantation care
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Tamar Schiff, MD (she/her/hers) - NYU Grossman School of Medicine About 37 million adults in the United States, and over 840…- ELSIcon2024
- 6th ELSI Congress
- Biobanking and genomic databases
- Clinical genetic testing
- equity and justice in genetics