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Publication
The "etiome": Identification and clustering of human disease etiological factors
BMC Bioinformatics -
Publication
Immortal data: A qualitative exploration of patients’ understandings of genomic data
European Journal of Human GeneticsLyle and colleagues analyze how patients and their relatives conceptualize the “immortality” of genomic data. They find that participants focus on the simplicity of providing a sample instead of the… -
News
Finale Meeting of the NHGRI Centers of Excellence in Ethical, Legal and Social Implications (ELSI) Research (CEER) Program
The Centers for Excellence in ELSI Research (CEER) Program, a set of research centers across the United States funded by the National Human Genome Research Institute (NHGRI) to promote interaction…- CEER
- NHGRI
- Trainees
- relationship building
- embedded ELSI
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Grant Abstract
Ownership Interests in Research Outputs of Genomic Citizen Science Initiatives
Ms. Christi Guerrini is research faculty in the Center for Medical Ethics and Health Policy at Baylor College of Medicine (BCM). BCM is a premier academic health science center known for excellence…- Academia
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- Area
- Biomedical Research
- Books
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Publication
Clinical trials or FDA-approved therapies? The ethics of sickle cell gene therapy access
American Journal of Bioethics -
Publication
Ancestry, race and ethnicity: The role and relevance of language in clinical genetics practice
Journal of Medical Genetics -
Publication
What would it take to enable germline editing in Europe for medical purposes?
European Journal of Health Law -
Publication
Artificial intelligence in healthcare: Review, ethics, trust challenges & future research directions
Engineering Applications of Artificial Intelligence