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211 - 220 of 7195 Topics
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Publication
"Who is watching the watchdog?": Ethical perspectives of sharing health-related data for precision medicine in Singapore
BMC Medical Ethics -
Publication
Australian attitudes towards waivers of consent within the context of genomic data sharing
Journal of Empirical Research on Human Research Ethics -
Publication
Using game theory to thwart multi-stage privacy intrusions when sharing data
Science AdvancesThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009004 -
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Research Tool
Questionnaire: “Data in question. ELSI Challenges in Biobank-based Research”
Goisef and colleagues developed a survey for professionals working in research-based biobanks in Europe that assess their satisfaction with current ELSI-related procedures. Topics assessed include:… -
Research Tool
My46: A Web-based Tool for Self-guided Management of Genomic Test Results
Tabor and colleagues developed My46, a self-guided, web-based information management system for individuals undergoing genetic testing in clinical and research settings, to enable them to choose… -
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Publication
Parents’ attitudes toward consent and data sharing in biobanks: A multisite experimental survey
AJOB Empir Bioeth -
Grant Abstract
Implementation of an impact assessment tool to optimize responsible stewardship of genomic data in the cloud
PROJECT NARRATIVE Cloud computing promises to scale up storage, analysis and sharing of health data needed to accelerate research in genomics and precision medicine but methods for evaluating how…- Data science
- bioethics
- Algorithms
- Delphi Study
- computerized tools
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Publication
Streamlining the ethical-legal governance of cross-border health data sharing during global health emergencies
Research Ethics