Document Type
Survey
Questionnaire: “Data in question. ELSI Challenges in Biobank-based Research”
Year:
Year
2019
Goisef and colleagues developed a survey for professionals working in research-based biobanks in Europe that assess their satisfaction with current ELSI-related procedures. Topics assessed include: collaboration and data sharing with industrial partners, secondary uses of participant data, and recontacting participants. There are 25 questions in this survey.
Research Population:
Research Population
Researchers
Citation:
Citation Title
Goisauf, M., Martin, G., Bentzen, H. B., Budin-Ljøsne, I., Ursin, L., Durnová, A., Leitsalu, L., Smith, K., Casati, S., Lavitrano, M., Mascalzoni, D., Boeckhout, M., Mayrhofer, M. Th. (2019) Data in question: A survey of European biobank professionals on ethical, legal and societal challenges of biobank research. PLoS ONE 14(9): e0221496.
Citation Link
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0221496#sec018
Contact:
Contact
Source
View online source