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Publication
"What is man?" The mystery beyond the genome
National Catholic Bioethics CenterDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
State newborn screening advisory committees
Johns Hopkins University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethical, legal, and social implications
National Academies PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
An ethical context for presymptomatic testing in Alzheimer's disease
Humana Press Inc.Digital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Social and ethical issues: Duty to warn, autonomy, privacy and discrimination
American Psychological AssociationDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
What will "All of Us" mean for each of us
SciTech LawyerThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009026 -
Grant Abstract
Perception of Carrier Status by Cystic Fibrosis Siblings
This project seeks to delineate problems to be addressed in testing programs in this study of perception of carrier status by CF siblings. By interviewing the adult siblings of CF patients and the CF…- Anxiety
- caucasian American
- Cognition
- Cystic Fibrosis
- depression
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Video
ELSIcon2022: Paper Session 11
ELSIcon2022 • Paper Session 11 • June 2, 2022 Includes discussion material from Anya Prince, Jessica L. LeBlanc, Lisa Dive and Ainsley Newson.- Genetic testing and screening
- Live
- Paper
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Video
ELSIcon2022: Paper Session 1
ELSIcon2022 • Paper Session 1 • May 31, 2022 Includes material from Sara H Katsanis, Sarah Roth, Rebecca Mueller, Shelly Simana, and Diana Madden.- Live
- Paper
- Genetic Counseling
- identity
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Video
ELSIcon2022: Paper Session 2
ELSIcon2022 • Paper Session 2 • May 31, 2022 Includes discussion material from Hadley Stevens Smith, Claudia Azuelos, Kate Saylor, and Joel Pacyna.- Live
- Paper
- Genetic testing and screening