• NIH Sep 30, 1991 | R01

    Perception of Carrier Status by Cystic Fibrosis Siblings

    Principal Investigator(s): Fanos, Joanna

    Institution: California Pacific Medical Center

    FOA Number: RFA-HG-91--01

    Abstract

    This project seeks to delineate problems to be addressed in testing programs in this study of perception of carrier status by CF siblings. By interviewing the adult siblings of CF patients and the CF siblings' spouses, the study will identify factors motivating or interfering with the pursuit of CF carrier testing in siblings, and assess the spouses' level of interest in testing. In addition to examining interest in testing, this study aims to assess the levels of understanding of test results and knowledge of medical aspects of CF by the interviewees, as well as to assess psychological functioning of CF siblings and spouses following testing. (Member of CFSC)

    FUNDING AGENCY:

    Funder:
    NIH

    Institute:
    NATIONAL HUMAN GENOME RESEARCH INSTITUTE

    Funding Type:
    R01

    Project Number:
    R01HG000639

    Start Date:
    Sep 30, 1991

    End Date:
    Aug 31, 1995

    PROJECT TERMS:

    Anxiety, caucasian American, Cognition, Cystic Fibrosis, depression, diagnosis design /evaluation, family genetics, functional ability, Genetic Counseling, genetic disorder diagnosis, Guilt, Health behavior, human subject, Interview, longitudinal human study, Motivation, Perception, psychological stressor, Siblings, young adult human (21-34)

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