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Publication
Motivations and concerns of patients considering participation in an implementation study of a hereditary cancer risk assessment program in diverse primary care settings
Genet MedClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG007292, U24HG007307 -
Publication
Patient preferences for massively parallel sequencing genetic testing of colorectal cancer risk: A discrete choice experiment
Eur J Hum GenetClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG0006507, U01HG007307, U01AG047109 -
Additional Resource
Ethical Implications of Emerging Biotechnology Syllabus
This course developed by Stephanie Malia Fullerton introduces students to select biomedical innovations and invites sustained consideration of the diverse ethical and social implications surrounding…- precision medicine
- syllabus
- Gene Editing
- prenatal testing
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Publication
Public attitudes challenge clinical practice on genetic risk disclosure in favour of healthcare-provided direct dissemination to relatives
European Journal of Human Genetics -
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Publication
Big data for biomedical education with a focus on the COVID-19 era: An integrative review of the literature
International Journal of Environmental Research and Public Health -
Publication
Diversity, profit, control: An empirical study of industry employees' views on ethics in private sector genomics
AJOB Empirical BioethicsThe key themes that emerged from Walker’s interviews with members of the U.S. private sector genomics industry were ethical concerns about the lack of diversity in genetic datasets, issues related to… -
Publication
Employing effective recruitment and retention strategies to engage a diverse pediatric population in genomics research
Am J Hum Genet.by Michelle A. Ramos, Katherine E. Bonini, Laura Scarimbolo, Nicole R. Kelly, Beverly Insel, Sabrina A. Suckiel, Kaitlyn Brown, Miranda Di Biase, Katie M. Gallagher, Jessenia Lopez, Karla López… -
News
Capacities of Global Institutions for Gene Drive Governance
Gene drive technologies represent a promising approach to the reduction of the global health burden posed by insect-borne infectious diseases like malaria and dengue. The application of new…- Gene Drive Technology
- Global Governance
- regulatory
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Publication
Professional improbity: How Hermann J. Muller's ethics affected his science
Journal of Occupational and Environmental Hygiene