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Publication
Participant reactions to a literacy-focused, web-based informed consent approach for a genomic implementation study
AJOB Empir BioethClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG007292, U24HG007307 -
Publication
Participant reactions to a literacy-focused, web-based informed consent approach for a genomic implementation study
AJOB Empirical BioethicsKraft and colleagues developed a literacy-focused, web-based consent approach to support enrollment of diverse participants in an ongoing clinical genomic implementation study in the effort to move… -
Grant Abstract
Understanding Implications of Genetic Attributions for Addiction
Addictive disorders are increasingly conceptualized as biomedical diseases with genetic roots. While conventional wisdom has suggested that attributing addictions to genetics should have many…- Addiction
- Adopted
- Adult
- Affect
- alcohol use disorder
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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
Background: There is great interest in the implementation of genomic medicine, i.e., using genomic information to inform patient care. As a result, patients with medically actionable (preventable and…- barrier to care
- base
- Behavior
- biobank
- cancer therapy
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Publication
Medical policy determinations for pharmacogenetic tests among US health plans
The American Journal of Managed Care -
Publication
Forensic genetic genealogy: A profile of cases solved
Forensic Science International Genetics -
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Additional Resource
Workshop Proceedings, Patients Charting the Course: Citizen Engagement and the Learning Health System, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2011)
This National Academies Press publication summarizes the proceedings of a workshop that explored advancing patient involvement in a learning health system. This 2-day workshop was convened by the…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
The key features of a genetic nondiscrimination policy: A Delphi consensus statement
JAMA Network Openby Diya Uberoi, Gratien Dalpé, Katherine Cheung, Emma Kondrup, Nicole Palmour, Thalia Arawi, Mykhailo Arych, Miguel A. Ramiro Aviles, Carmen Ayuso, Heidi B. Bentzen, Katherine Blizinsky, Yvonne…