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Grant Abstract
Colliding Categories: Haplotypes, Race & Ethnicity
The aim of this project is to explore the ethical and legal ramifications of the impending collision between biological and regulatory classifications of population subgroups in American society. The…- Ethics
- Ethnic group
- genetic mapping
- genotype
- Internet
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Video
ELSIcon2022 Panel: Ethical, Clinical, Legal, and Economic Issues Surrounding Genetic Variant Reinterpretation
ELSIcon2022 • Panel • June 3, 2022 Paul Appelbaum, Wendy Chung, Gary Marchant, Jose Pagan The knowledge base for interpreting genetic variants changes as new cases are reported, population…- Live
- Panel
- return of results
- Genetic testing and screening
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Research Tool
Clinician-reported Genetic Testing Utility Index (C-GUIDE)
Hayeems and colleagues developed The Clinician-reported Genetic Testing Utility Index (C-GUIDE) to define and quantify the clinical utility of genetic testing. C-GUIDE was designed to capture the… -
Publication
Regulatory barriers to US-China collaboration for generative AI development in genomic research
Cell Genomics -
Publication
Human Genetics Society of Australasia Position Statement: Use of human genetic and genomic information in healthcare settings
Twin Research and Human Genetics -
Publication
Public research and private development: Patents and technology transfer in government sponsored research
Virginia Law Review -
Collection
Dataveillance and Human Rights
Nearly 75 years ago, countries agreed to an International Bill of Human Rights, that included, among other fundamental rights, a right to privacy, a right to science, and a right to health. Cohesive…- data privacy
- data justice
- public health surveillance
- HIPAA