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2281 - 2290 of 3998 Topics
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Publication
The Kaiser Permanente biobank: A multiregion resource linking specimens and electronic medical records for broad research in an integrated health care delivery system
Journal of Patient-Centered Research and Reviews -
Publication
Ethical, legal, and social issues in the design and conduct of human genome epidemiologic studies
Oxford University Press -
News
CERA Co-Director Mildred Cho Recognized for Outstanding Mentorship with Inaugural Bernard Lo, MD Award in Bioethics
Mildred Cho, PhD, Professor of Pediatrics and Medicine at Stanford University, has been named the recipient of The Greenwall Foundation’s inaugural Bernard Lo, MD Award in Bioethics. The Lo Award…- Mildred Cho
- Bioethics Award
- Greenwall Foundation
- Mentorship
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News
Novel Gene Therapies for Pediatric and Young Adults with Sickle Cell Disease: Engaging Patient and Parent Stakeholders Working Group
Sickle Cell Disease (SCD) is an inherited disorder that results in premature mortality and severe morbidity in millions of afflicted individuals worldwide. Novel therapies are urgently needed and…- working group
- gene therapy
- Sickle Cell
- Stakeholder Engagement
- Spotlight
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News
Developing Resources for DNA Testing at the Border: BorderDNA Working Group
Emerging technological advances and political shifts have expanded immigration-related DNA applications beyond relationship tests within a family for visa petitions. Several U.S. government programs…- genetic testing
- Immigration
- Data Collection
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Additional Resource
Consensus Study Report, Addressing Sickle Cell Disease, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2020)
The National Academies of Sciences, Engineering, and Medicine released a report in September 2020 that provides a blueprint and eight overarching strategies for improving healthcare for people living…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
Assessing the Impact of DTC Genetic Testing to Inform Policy Development
This application proposes to assess the societal impact of genetic tests offered directly to consumers (DTC) and to develop policy options for DTC oversight that will balance the benefits of…- Attitude
- Awareness
- base
- Businesses
- consumer behavior
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Grant Abstract
Impact of Direct to Consumer Genetic Testing
The rapid identification of genetic risk factors for common, complex diseases poses great opportunities and challenges for public health. Genetic information is increasingly being utilized as part of…- Ally
- Alzheimer's Disease
- Area
- Arthritis
- Authorization documentation
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Publication
H3Africa Biorepository PI Working Group. Building blocks for better biorepositories in Africa
Genome Medicine