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231 - 240 of 7311 Topics
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Publication
Has NIH lost its halo?
Issues in Science and TechnologyDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Controlling the signal: Practical protection of genomic data sharing in beacon services
BMC Medical GenomicsThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009031 -
Publication
Navigating sexual orientation and gender identity data privacy concerns in United States genetics practices
Journal of Genetic Counseling -
Publication
DNA data sharing: Research participants' perspectives
Genetics in MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
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Publication
Ethical and equitable digital health research: Ensuring self-determination in data governance for racialized communities
Cambridge Quarterly of Healthcare Ethics -
Publication
Public and patients’ perspectives towards data and sample sharing for research: An overview of empirical findings
Journal of Empirical Research on Human Research Ethics -
Publication
A game theoretic approach to balance privacy risks and familial benefits
Scientific ReportsGuo and colleagues use a game theoretic approach to model how consumers of third-party interpretation (TPI) services may act as they weigh the benefits of sharing their genetic data against the… -
News
ELSIconversations on Population Genetic Screening Programs
Ethical considerations and strategies for launching, evaluating, and improving population genetic screening programs At the ELSI Congress in June 2022, genetic counselor Kim Foss and ELSI…