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Grant Abstract
Genetics, Vulnerable Populations and Health Disparities
The ultimate aim of genetic research is to improve human health and prevent disease. One key measure of success in translating new genetic knowledge into improved health will be the extent to which…- Asthma
- behavioral /social science research tag
- Clinical Research
- Diabetes Mellitus
- Ethics
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Research Tool
CSER Phase 1: Informed Consent Form and HIPAA Authorization - PediSeq: The Pediatric Genetic Sequencing Project
The purpose of PediSeq: The Pediatric Genetic Sequencing Project was to identify best practices for educating patients about exome and genome sequencing, determining the sequencing data relevent to… -
News
21,000 GenETHX Records Added to the ELSIhub Publications Database
We are excited to announce the migration of over 21,000 publications from the Genetics and Ethics Database (GenETHX) created by the Bioethics Research Library (BRL), Kennedy Institute of Ethics (KIE…- ELSI publications
- GenETHX
- Georgetown University, Kennedy Institute of Ethics, Bioethics Research Library
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Publication
Educational and ethical considerations for genetic test implementation within health care systems
Network and Systems Medicine -
Publication
Playing God? Media coverage of CRISPR in the United States
Public Understanding of ScienceStapleton and Torres Yabar analyze U.S. and television news sources and conclude that the media have not established the salience of CRISPR as a policy issue. -
Publication
Discovery, transfer, and diffusion of technologies for the detection of genetic disorders. Policy implications
Int J Technol Assess Health Care -
Grant Abstract
Routes of Access to Genetic Services For Rural KY Women
The purpose of the proposed project is to deepen empirical understanding of reproductive genetic services in rural areas, through a comparative case study of genetic counseling, testing, and related…- assistive reproductive technique
- behavioral /social science research tag
- case history
- Clinical Research
- culture
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Publication
Gene patents: The shadow of uncertainty
ScienceDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
Ethics, policy, and rare genetic disorders: The case of Gaucher disease in Israel
Theoretical Medicine and BioethicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Polygenic scores of cardiometabolic risk factors in American Indian adults
JAMA Network Open