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Informed Consent in Genomic Medicine – Strengthening Assessment, Ethical Resilience, Practice
The GE2P2 Global Foundation – a 2016 spin-off from the Division of Medical Ethics, NYU School of Medicine – has launched a multi-year initiative to assess and materially strengthen informed consent…- genome informed consent
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Additional Resource
Oregon State Statute (Oregon: ORS §743.730 )
Health benefit plans that apply pre-existing condition exclusions may not do so based on genetic information in the absence of a diagnosis.- state statute
- Oregon
- health insurance nondiscrimination
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Additional Resource
Minnesota State Statute (Minnesota: MS §13.386)
Genetic information may be collected by a government entity or any other person only with written informed consent, used only for the purposes stated in the consent, be stored only for the duration…- state statute
- Minnesota
- genetic privacy
- Newborn screening
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Additional Resource
Minnesota State Statute (Minnesota: MS §144.192)
The health commissioner may collect, use, store, and disseminate biological specimens and health data to conduct research in a manner that is consistent with the federal common rule for the…- state statute
- Minnesota
- genetic privacy
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Additional Resource
New York State Statute (New York: NYCL (CVR) §48 et seq. )
Unless it can be clearly shown that a person's unique genetic disorder, defined to include the sickle cell trait, carriers of Tay-Sachs, and carriers of Cooleys anemia only, would prevent a…- state statute
- New York
- employment nondiscrimination
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Additional Resource
Massachusetts 2019 State Bills (Massachusetts 2019 H180)
Pertains to municipal master plans. Master plans developed should take into account to the extent feasible ways in which future policies and programs can advance equity based on various factors such…- state bill
- bill
- bill status pending
- Massachusetts
- municipal master plans
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Additional Resource
Connecticut State Statute (Connecticut: CGA 38a §816 )
An insurance company, hospital service corporation, health care center or fraternal benefit society providing individual or group health insurance coverage may not refuse to insure, continue to…- state statute
- statute
- Connecticut
- pre-existing condition exclusions
- pre-existing condition
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Additional Resource
Maryland 2014 State Bills (Maryland 2014 SB 227)
Repeals a prohibition on advertising for or soliciting business related to direct to consumer genetic testing in the State. Died. Bill Status: Died- state bill
- bill
- bill status died
- Maryland
- consumer genetic testing
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Additional Resource
Colorado 2008 State Bills (Colorado 2008 SB 241 )
This bill prohibits the reduction of an employees permanent total disability when the disability is a result of a work-related injury or a work-related injury combined with a congenital, genetic or…- state bill
- bill
- Colorado
- permanent disability
- work-related injury
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Additional Resource
Genetics and Ethics Syllabus
This course developed by Stephanie Brown covers ethical and social issues related to research and clinical practice in medical genetics and genomics.- syllabus
- virtue ethics
- deontology
- Utilitarianism
- Casuistry