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Grant Abstract
Return of Results from Psychiatric Genomics Research: Attitudes and Barriers
This project employs a multi-method, transdisciplinary approach that combines ethnographic participant- observation, interview research methods, ethical, legal, and public policy analyses. The two…- Attitude
- authority
- Bipolar Disorder
- Caring
- Case Study
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News
What is the Genomics and Society Working Group at NHGRI?
The Genomics and Society Working Group (GSWG) is the oldest of four working groups established by National Advisory Council for Human Genome Research (NACHGR) (also known as “the council”) to provide… -
News
21,000 GenETHX Records Added to the ELSIhub Publications Database
We are excited to announce the migration of over 21,000 publications from the Genetics and Ethics Database (GenETHX) created by the Bioethics Research Library (BRL), Kennedy Institute of Ethics (KIE…- ELSI publications
- GenETHX
- Georgetown University, Kennedy Institute of Ethics, Bioethics Research Library
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Video
ELSIcon2022 Paper: Navigating community engagement in clinical trial research
ELSIcon2022 • Paper • June 1, 2022 Mikaella Caruncho, Jennifer James, Galen Joseph In recent years, community engagement approaches to genomic research have grown in popularity, motivated by…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Grant Abstract
Human Virome Characterization Center for the Oral-Gut-Brain Axis
Ethical, Legal, and Social Implications Core: Abstract The Human Virome Program (HVP), which aims to broadly characterize the composition of the human virome across the lifespan in longitudinal,…- gut-brain axis
- mutual learning
- informed consent
- human virome
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News
ELSI in Review • December 2022
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our December 2022 set explores fertility preservation for… -
Publication
Surveying public perceptions of artificial intelligence in health care in the United States: Systematic review
Journal of Medical Internet Research -
Publication
The Landscape of Cellular and Gene Therapy Products: Authorization, Discontinuations, and Cost
Human Gene Therapy Clinical Development -
Publication
Clinician-stakeholders' perspectives on using patient portals to return Lynch Syndrome screening results
J Genet Couns