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News
I-GEN: The Interdisciplinary Genome Editing Network
“Genome editing” describes a set of techniques in molecular biology that allow scientists to modify DNA to add, remove or change sequences of genetic material. Genome editing can be understood…- genome editing
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Video
"I have data, I have science behind my treatment plan": A qualitative study of clinician and patient views and experiences with pharmacogenomic testing for depression
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Katherine Hendy, PhD (she/her/hers) - University of Michigan Background: Pharmacogenomic (PGx) testing for depression…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- Patient-provider communication
- precision medicine
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Video
Patient perceptions of duties and responsibilities in variant reclassification and recontact process
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Sukh Makhnoon, PhD, MS - University of Texas Southwestern Medical Center Reclassification of variants of uncertain…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- precision medicine
- Return of results and incidental findings
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Video
ELSIcon2024: Impact of Returning Genomic Results Related to Adult-Onset Conditions to Pediatric Patients
ELSIcon2024 • Paper • June 11, 2024 Authors: Speaker: Adam Buchanan, MS, MPH, CGC (he/him/his) – Geisinger College of Health Sciences There is a dearth of empirical data on the…- ELSIcon2024
- 6th ELSI Congress
- Clinical genetic testing
- precision medicine
- Return of results and incidental findings
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News
ELSI in Review • May 2025
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our May 2025 set explores ethical considerations in… -
News
Melanie Myers: A Call for Research on Genetic Counseling Processes and Practices
Dr. Myers discusses this exciting new RFA – and how to use ELSIhub to find and follow up on funding opportunities Melanie Myers, PhD, MS spoke with CERA staff about the new National Human…- Genetic Counseling
- genetic counseling research
- genetic counseling training
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Publication
Just dissemination of genomics-informed public health applications: Time to deepen our public engagement approaches
Public Health Genomics -
Grant Abstract
Trans/Forming Genomics: Guidance for Research Involving Transgender and Gender Diverse People
PROJECT NARRATIVE The recent explosion in biobanking, more routine collection of data on gender identity, and rapid expansion of research in transgender and gender diverse (TGD) populations has…- gender affirmation
- gender diversity
- gender expression
- polygenic risk score
- precision medicine
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Publication
Informed consent conversations: Neither the beginning nor the end
American Journal of Bioethics -