Image
The topics page enables quick access to all resource types on
the platform, organized by relevance to your topic.
Popular Searches
Featured Topics
Featured Topics
251 - 260 of 7195 Topics
-
Publication
Data sharing in genomics--re-shaping scientific practice
Nature ReviewsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Biobanking and data sharing: A plurality of exchange regimes
Genomics, Society and PolicyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
New NIH rules promote greater sharing of tools and materials
ScienceDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
Just Funded
Our Just Funded feature is a listing of ELSI grants that were recently awarded by the National Human Genome Research Institute (NHGRI). If we missed your grant, please email us at info@… -
Video
Reporting practices for sexual and gender minority demographic information in NIH-supported genomic studies
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Zo Bly, BA (they/them/theirs) - National Human Genome Research Institute, National Institutes of Health Clearly defined and…- ELSIcon2024
- 6th ELSI Congress
- Gender studies
- Methodology and study design
-
Publication
Data ownership in genomic research consortia
Journal of Law and the Biosciencesby Jane Nielsen & Dianne Nicol -
Publication
Assessing the privacy risks of data sharing in genomics
Public Health GenomicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Impact of Privacy Environments for Personal Health Data on Patients
A big data ecosystem is evolving in our society in which people may have, or feel they have, little control over the flow of their personal health information, and thus their privacy. Further,…- Adult
- Affinity
- Area
- base
- Behavioral
-
Research Tool
Data Dictionary: Newborn Screening Residuals
This study evaluated public opinion about the policies and practices relevant to the retention and use of residual bloodspots for biomedical research. The data dictionary outlines the structure,…