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Video
ELSIcon2022 Paper: How and why do researchers use “Ancestry”?
ELSIcon2022 • Paper • June 1, 2022 Anna Lewis, Bege Dauda, Santiago Molina As the ways in which race is used in biomedicine have come under scrutiny, including for contribution to race-…- Live
- Paper
- Language and categorization
- Ethnicity
- Use of race and ancestry in research and the clinic
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Research Tool
CSER Phase 1: Consent Form - CanSeq, The use of sequencing to guide the care of cancer patients study
This consent form for the CanSeq study included permission to perform genetic tests on tissue specimens that had already been collected and stored as part of clinical care or other research studies… -
News
ELSI in Review • September 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our September 2023 set explores ethical challenges associated… -
Grant Abstract
History of Prenatal Diagnosis
This project involves the research and writing of a history of modern prenatal diagnosis. Recent scholarly work in the history of science, technology, and medicine will provide the conceptual… -
Grant Abstract
Duke Center for the Study of Public Genomics
Duke's Center for the Study of Public Genomics will gather and analyze information about the role of publication, data sharing, materials-sharing, patenting, database protection, and other…- Africa
- base
- benefit sharing
- Bidil
- Businesses
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Grant Abstract
DNA Patent Policies at Academic Institutions
The overall goal is to study the licensing policies and practices of 24 academic institutions regarding their DNA-based patents. The proposed project is conceived as a pilot study that will test the…- biotechnology
- DNA
- Genetic Screening
- geographic site
- health care policy
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Video
Addressing Racism in Research and Clinical Practice
ELSI Friday Forum • December 11, 2020 Health scientists, genome researchers, and scholars who study the ethical, legal, and social implications of genetics and genomics (ELSI) are increasingly…- structural racism
- Applied Research
- clinical practice
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Grant Abstract
An ELSI-Integrated Evaluation of the Family-Level Utility of Pediatric Genomic Sequencing
PROJECT NARRATIVE The goal of the proposed research is to investigate how clinical genomic sequencing impacts families of pediatric patients. This research will develop an empirically informed…- Affect
- American
- Area
- Award
- base
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Grant Abstract
Surfacing values in the economic evaluation of genomic sequencing for diagnosis of children with rare diseases
PROJECT NARRATIVE Though any single rare disease is by definition uncommon, together these diseases affect nearly 30 million individuals in the United States, two-thirds of whom are children, and…- Affect
- Anthropology
- base
- Bioethics
- career
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Grant Abstract
Reporting Adult-Onset Genomic Results to Pediatric Biobank Participants and Parents
Project Narrative The potential benefits and harms of returning genomic results to children and their parents are matters of enduring controversy?especially genomic results for adult-onset conditions…- Address
- Adolescent
- Adolescent Development
- Adult
- Affect