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Grant Abstract
The Ethics of Inclusion: Conceptualizing Diversity in Genomics Research
In the emerging era of precision medicine, there have been increasing calls for diversity and the inclusion of historically under-represented racial and ethnic populations in biobanking and…- Attention
- Beneficence
- benefit sharing
- biobank
- Clinical Medicine
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Publication
In search of genetic precision
LancetDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
News
Navigating Consumer Protections for Genomics and Precision Health: An Interview with Jennifer K. Wagner and Abdulai I. Rashid
Despite their increasingly critical importance, consumer protections available from the Federal Trade Commission (FTC) and state Attorneys General related to the direct-to-consumer genomics and… -
News
ELSI in Review • November 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our November 2023 set explores the ethics of risk prediction… -
Publication
A children's rights framework for genomic medicine: Newborn screening as a use case
Medical Research Archives -
Publication
Barred from better medicine? Reexamining regulatory barriers to the inclusion of prisoners in research
Journal of Law and the Biosciences -
News
All of Us Research Program Releases Tribal Consultation Final Report
NIH to enhance tribal engagement efforts for precision medicine research: Tribal leaders inform All of Us Research Program’s next steps to include tribal communities PRESS RELEASE…- Tribal Sovereignty
- indigenous community
- Data Governance
- Alaska Native/American Indian Health Research
- Best practices for clinical and research ethics consultation
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