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Publication
Informing policy for the Australian context - costs, outcomes and cost savings of prenatal carrier screening for cystic fibrosis
The Australian & New Zealand Journal of Obstetrics & GynaecologyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
A parent's point of view on the American Academy of Pediatrics policy statement: Children as hematopoietic stem cell donors
Pediatric Blood & CancerDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
International Health Research Ethics Training Program
Sub Saharan Africa with only 11% of the world's population has more than 24% of the global disease burden, over 70% of the world's HIV infected persons, and only 3% of the global work force…- Administrator
- Adult
- Africa
- Africa South of the Sahara
- African
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Publication
Beyond individual responsibility: Group harms in genomic (data-centric) research ethics require structural, justice-oriented solutions
American Journal of Bioethics -
Publication
Too little, too soon: Japan's experiment in regenerative medicine deregulation
Cell Stem Cell -
Publication
Guideline for feedback of individual genetic research findings for genomics research in Africa
BMJ Global Health -
Publication
Patients' choices for return of exome sequencing results to relatives in the event of their death
J Law Med EthicsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): U01HG006507, U01HG007307, U01HG006375, P50 HG003374, R01CA154517 -
Additional Resource
Massachusetts State Statute (Massachusetts: MGL 175 §§108I and 120 E)
An insurer, agent or broker authorized to issue life insurance policies, policies against disability from injury or disease or policies for long-term care may not practice unfair discrimination…- state statute
- Massachusetts
- disability
- nondiscrimination
- genetic information
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Video
ELSIcon2022 Paper: Shining a light on overlooked questions in ELSI genomics
ELSIcon2022 • Paper • May 27, 2022 Ainsley Newson The rapid mainstreaming of clinical genomics and an ever-expanding global genomics research agenda have given rise to a large body of scholarship…- Reflections on the ELSI field
- Genetic testing and screening
- Paper
- Pre-Recorded