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2981 - 2990 of 4027 Topics
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Publication
Gene therapy -- still a work in clinical and regulatory progress
New England Journal of MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
New Hampshire 2020 State Bills (New Hampshire 2020 HB 1417)
Prohibits private entities from requiring an individual to disclose or provide biometric data, including DNA, as a condition of doing business with, engaging in any business activity or relationship…- state bill
- bill
- bill status pending
- New Hampshire
- genetic privacy
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Additional Resource
Louisiana 2009 State Bills (Louisiana 2009 HB 406)
This bill amends Louisiana's genetic nondiscrimination in health insurance law. The definition of genetic information and genetic test is revised. The bill also prohibits health insurers from…- state bill
- bill
- bill status enacted
- Louisiana
- health insurance
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Additional Resource
California 2017 State Bills (California 2017 AB 375)
Grants consumers the right to request a business to disclose the categories and specific pieces of personal information that it collects about the consumer; the categories of sources from which that…- state bill
- bill
- California
- biometric information
- DNA
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Grant Abstract
After the Golden State Killer: Public Preferences and Policy Implications of Police Use of Genetic Data (The ForenSeq Study)
PROJECT NARRATIVE Investigative genetic genealogy, a technique used by law enforcement to generate leads in criminal cases through searches of genetic genealogy databases, raises important privacy…- Adopted
- base
- California
- clinical care
- Clinical Research
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Publication
Expanding access to large-scale genomic data while promoting privacy: A game theoretic approach
American Journal of Human GeneticsThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009032 -
Publication
Building a dossier on the cheap: Integrating distributed personal data resources under cost constraints
Proceedings of the 26th ACM Conference on Information and Knowledge Management (CIKM)The Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009033 -
Publication
An open source tool for game theoretic health data de-identification
AMIA Annual Synposium Proceedings ArchiveThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009034 -
Publication
It's all in the timing: Calibrating temporal penalties for biomedical data sharing
Journal of the American Medical Informatics AssociationThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009028 -
Publication
Assessing risks to privacy in biospecimen research
MIT PressThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009029