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Publication
Gene therapy: An historical overview for familial hearing loss
International Journal of Molecular Therapy -
Publication
Patient and public perspectives on cell and gene therapies: A systematic review
Nature Communications -
Publication
Germ-line gene therapy: The costs of premature ultimates
Politics and The Life SciencesDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Video
Ethical Challenges in Novel Gene Therapies for Sickle Cell Disease
ELSI Friday Forum • June 11, 2021 Pilar Ossorio, JD, PhD, moderates this session with panelists Liza-Marie Johnson, MD, MPH, MSB, and Melissa Creary, PhD, MPH, describing the…- sickle cell disease
- Gene Therapy / Gene Transfer
- Genetic Intervention
- Gene Transfer
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Publication
HTA methodology and value frameworks for evaluation and policy making for cell and gene therapies
The European Journal of Health Economics -
Publication
Introducing biosimilar competition for cell and gene therapy products
Journal of Law and the Biosciences -
Video
ELSIcon2022 Paper: Democratizing Knowledge for Sickle Cell Disease Gene Therapy: A Deliberative Stakeholder Engagement Approach
ELSIcon2022 • Paper • June 3, 2022 Kiana Amini, Vence Bonham The advent of genetic therapy technologies implicates both tremendous therapeutic promise and potential risk. Sickle cell disease…- Live
- Paper
- Gene therapy and gene editing
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Video
January 2025 EFF: Public-Private Partnerships for Gene Therapies: What Does the Public Get?
Publicly-funded researchers frequently transfer their gene therapy and gene-editing medical research to venture capital-funded startups for clinical development. In tandem, the public sector… -
Video
Re-envisioning Translational Equity in Pediatric Gene Therapy Research
ELSIcon2024 • Paper • June 12, 2024 Authors: Speaker: Aaron Goldenberg, PhD, MPH (he/him/his) - Case Western Reserve University School of Medicine Over the last decade, the…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- Gene therapies and gene editing