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Research Tool
"Seeing Your Data", Video for American Indian and Alaska Native Participants, All of Us Research Program (Spanish Version)
"Seeing Your Data" is a 34 second video created by the All of Us Research Program (All of Us) to provide information to American Indian and Alaska Native participants about which personal… -
News
Just Funded
Our Just Funded feature is a listing of ELSI grants that were recently awarded by the National Human Genome Research Institute (NHGRI). If we missed your grant, please email us at info@… -
Publication
Genetic nondiscrimination legislation: A critical prerequisite for pharmacogenomics data sharing.
PharmacogenomicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Biobank participants' attitudes toward data sharing and privacy: The role of trust in reducing perceived risks
Journal of Empirical Research on Human Research Ethics -
News
ELSI in Review • January 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our January 2023 set explores the ethics of digital twins in… -
Publication
AMCP Partnership Forum: Preparing for and managing rare diseases
Journal of Managed Care + Specialty Pharmacy -
Grant Abstract
Clinical Integration of Whole Genome Sequencing: A Policy Analysis
Innovations in next-generation DNA sequencing technologies, accompanied by exponential drops in cost, have made it possible for clinicians to begin to use whole genome sequencing (WGS) to diagnose,…- Agreement
- Area
- Attention
- base
- Clinic
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Publication
Biobank participants’ attitudes toward data sharing and privacy: The role of trust in reducing perceived risks
Journal of Empirical Research on Human Research Ethics -
Video
ELSIcon2022 Panel: If we build it will they come? Navigating ELSI considerations for broad and responsible use of All of Us data by non-traditional researchers
ELSIcon2022 • Panel • June 3, 2022 Subhashini Chandrasekharan, Laura Beskow, Rosario Isasi, Stephen Sodeke The All of Us Research Program is in the process of collecting biospecimens and…- Live
- Panel
- Data and data stewardship
- precision medicine
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Publication
Genomic research and wide data sharing: Views of prospective participants
Genetics in medicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…