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Publication
Genetic nondiscrimination legislation: A critical prerequisite for pharmacogenomics data sharing.
PharmacogenomicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Biobank participants' attitudes toward data sharing and privacy: The role of trust in reducing perceived risks
Journal of Empirical Research on Human Research Ethics -
News
ELSI in Review • January 2023
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our January 2023 set explores the ethics of digital twins in… -
Publication
AMCP Partnership Forum: Preparing for and managing rare diseases
Journal of Managed Care + Specialty Pharmacy -
Grant Abstract
Clinical Integration of Whole Genome Sequencing: A Policy Analysis
Innovations in next-generation DNA sequencing technologies, accompanied by exponential drops in cost, have made it possible for clinicians to begin to use whole genome sequencing (WGS) to diagnose,…- Agreement
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Video
ELSIcon2022 Panel: If we build it will they come? Navigating ELSI considerations for broad and responsible use of All of Us data by non-traditional researchers
ELSIcon2022 • Panel • June 3, 2022 Subhashini Chandrasekharan, Laura Beskow, Rosario Isasi, Stephen Sodeke The All of Us Research Program is in the process of collecting biospecimens and…- Live
- Panel
- Data and data stewardship
- precision medicine
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Publication
Biobank participants’ attitudes toward data sharing and privacy: The role of trust in reducing perceived risks
Journal of Empirical Research on Human Research Ethics -
Publication
Genomic research and wide data sharing: Views of prospective participants
Genetics in medicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
United States: Law and policy concerning transfer of genomic data to third countries
Hum Genet -
Publication
Can genomic research make a useful contribution to social policy?
Royal Society Open ScienceAsbury, McBride, and Bawn review two reports and conclude that policy makers should focus on increasing genetic literacy in the UK through public education and that scientists should continue efforts…