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Publication
Systematic review of N-of-1 studies in rare genetic neurodevelopmental disorders
Neurology -
Publication
Attitudes toward genetic research review: Results from a survey of human genetics researchers
Public Health Genomics -
Video
ELSIcon2022 Panel: Engagement with Historically Marginalized Communities: Methods, Positionality and ELSI in Precision Medicine Research
ELSIcon2022 • Panel Session 12 • June 2, 2022 Kyle B. Brothers, Nanibaa' A. Garrison, Maya Sabatello, Amy Lemke The practice of community engaged research is grounded in ethical, practical,…- Live
- Panel
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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News
AJOB Seeks Open Peer Commentaries for the ELSI Congress 2022 Special Issue
We are pleased to announce that five articles have been accepted for publication in the special ELSI Congress 2022 issue of the American Journal of Bioethics (AJOB): Who Decides What is… -
Video
September 2024 ELSI Friday Forum: Enhancing Access for Historically Marginalized Populations using the Translational Genomics Pipeline
In an era where genomic medicine promises to transform healthcare with cutting-edge treatments and personalized care, it is crucial to ensure these advancements are accessible to all, particularly…- Genomic medicine
- marginalized population
- access disparities
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Publication
Latinx attitudes, barriers, and experiences with genetic counseling and testing: A systematic review
Reproductive Health -
Grant Abstract
The ELSI of Genetic Testing in the Workplace
The objective of this proposal is to begin to anticipate, analyze and address the ethical, legal and social implications of the use of new genetic information and technologies in a critical non-…- Clinical Research
- Ethics
- Focus Groups
- Genetic Screening
- health related legal
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Publication
Mapping ethical, legal, & social implications (ELSI) of assisted reproductive technologies
Journal of Assisted Reproduction and Genetics -
Publication
Benefits and limitations of telegenetics: A literature review
Journal of Genetic Counseling -
Publication
The ethical implications of tissue engineering for regenerative purposes: A systematic review
Tissue Engineering Part B: Reviews