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Grant Abstract
Trans/Forming Genomics: Guidance for Research Involving Transgender and Gender Diverse People
PROJECT NARRATIVE The recent explosion in biobanking, more routine collection of data on gender identity, and rapid expansion of research in transgender and gender diverse (TGD) populations has…- gender affirmation
- gender diversity
- gender expression
- polygenic risk score
- precision medicine
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Grant Abstract
Haplotype Mapping and U.S. Chinese Community Engagements (HAPMAP)
Some socially identifiable groups have historically perceived genetic research with considerable mistrust. For this reason, and to better understand the salience of community-based ethical, legal and…- behavioral /social science research tag
- Belief
- biotechnology
- blood chemistry
- Chinese American
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Job Posting
Staff Clinical Ethicist
-Provides clinical ethics consultation services for MedStar Union Memorial Hospital (MUMH) and MedStar Good Samaritan Hospital (MGSH) and may rotate with other members of the John J. Lynch, MD Center…- Clinical Ethics
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Publication
Professional improbity: How Hermann J. Muller's ethics affected his science
Journal of Occupational and Environmental Hygiene -
Video
ELSIcon2022 Paper: Translating Genomic Science: How Genetic Counselors Navigate Ethical and Professional Dilemmas in the 21st Century
ELSIcon2022 • Paper • June 2, 2022 Susan Markens With the acceleration of new genetic discoveries and testing techniques in the first decades of the twenty-first century, genomic technologies…- Live
- Paper
- Genetic Counseling
- Genetic testing and screening
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Video
ELSIcon2022 Panel: Privacy and utility of genetic testing among families with hereditary cancers living in three countries: The International Cascade Screening experience
ELSIcon2022 • Panel 5 • May 31, 2022 Silvia Barnoy, Efrat Dagan, Sue Kim, Maria Caiata-Zufferey, Maria Katapodi Hereditary breast and ovarian cancer (HBOC) and Lynch syndrome (LS) are monogenic…- Live
- Panel
- Disclosure of genetic risk information to relatives
- equity and justice in genetics
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Additional Resource
Consensus Study Report, Scientific and Medical Aspects of Human Reproductive Cloning, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2002)
This National Academies Press publication documents the evidence-based findings, conclusions, and recommendations of a committee of experts charged with investigating the scientific, medical, and…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Grant Abstract
Impact of the HGI on Society: A Women's Studies Approach
The objectives of this group research project are to extend the analysis of ethical and social questions raised by the Human Genome Initiative by utilizing insights and methodology recently developed…- Ethics
- Genome
- health related legal
- human genetic material tag
- meeting /conference /symposium
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Publication
Should pregnant women be charged for non-invasive prenatal screening? Implications for reproductive autonomy and equal access
Journal of Medical Ethics