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Publication
A communication and decision-making framework for pediatric precision medicine
Pediatrics -
Publication
Bridging the gap: Returning genetic results to Indigenous communities in Latin America
Frontiers in Genetics -
Grant Abstract
Families At Risk: Long-term Impact of Huntington's Presymptomatic Genetic Testing
Huntington's disease (HD) has for decades served as a model for how we think about genetic testing, and its benefits and risks for tested individuals and their families. In 1983, the gene for HD…- Adult
- Benefits and Risks
- career
- Child
- Chromosome 4
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Additional Resource
Minnesota 2012 State Bills (Minnesota 2012 HF 3025)
This bill amends the definition of genetic test in the statutes regarding government data practices. Measure failed. Bill Status: Died- state bill
- bill
- bill status died
- Minnesota
- genetic privacy
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News
I-GEN: The Interdisciplinary Genome Editing Network
“Genome editing” describes a set of techniques in molecular biology that allow scientists to modify DNA to add, remove or change sequences of genetic material. Genome editing can be understood…- genome editing
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Additional Resource
Workshop Proceedings, Indo-U.S. Workshop on Challenges of Emerging Infections and Global Health Safety, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2016)
This report summarizes the proceedings of a workshop hosted by the National Academy of Sciences and Indian National Science Academy in November 2014. The workshop explored global issues related to…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
An AI bill of rights: Implications for health care AI and machine learning—A bioethics lens
The American Journal of Bioethics