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Scenarios for Ethical and Legal Analysis of Genomic Data Sharing Practices
McWhirter and colleagues report the development and validation of 6 scenarios based on actual genomic data sharing pratices in Australia. These scenarios could be used to inform the decision-making… -
Grant Abstract
Increasing AIAN Research Engagement through a Culturally Adapted Ethics Training
American Indian and Alaska Natives (AIAN) face glaring health disparities, and AIAN-specific research lags behind other racial and ethnic data in addressing AIAN health concerns. Engaging AIAN…- Accidental Injury
- Address
- Affect
- Alaska Native
- Alcoholism
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Publication
Moral issues in Catholic health care
Saint Charles Borromeo SeminaryDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Genetic testing and screening in the age of genomic medicine
New York State Task Force on Life and the LawDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethics in population-based genetic research
Accountability in ResearchDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Issues in medical research ethics
Berghahn BooksDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Recommendations on ethical issues in obstetrics and gynecology
International Federation of Gynecology and ObstetricsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholdersengagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Grant Abstract
Disability, diversity and trust in precision medicine research: stakeholders engagement
Project Narrative Studies suggest that distrust is a major barrier for participation of minorities in Precision Medicine Research (PMR), though no study has examined the sources of (dis)trust and…- Adult
- Affect
- African American
- Alaska Native
- American Indians
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Grant Abstract
A Risk Management Framework for Identifiability in Genomics Research
When the Human Genome Project was completed almost ten years ago it cost millions of dollars to sequence an individual's genome. Yet, the evolution of high-throughput sequencing and…- Academic Medical Centers
- Address
- Adopted
- Agreement
- Back