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Video
ELSIconversations - The Misuse of Genomic Data, Session 2
Full title: What Can Geneticists Do to Address the Misuse of Genomic Data? Purdue University and CERA Collaboration Recent, but reemergent misuses of genetic data and research remain a critical…- Genomic Information
- genomic data
- genomic data privacy
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Video
ELSIconversations - The Misuse of Genomic Data, Session 1
Full title: What Can Geneticists Do to Prevent the Misuse of Genomic Data? Purdue University and CERA Collaboration Recent, but reemergent misuses of genetic data and research remain a critical…- Genomic Information
- genomic data
- genomic data privacy
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Publication
DECIPHER: Improving genetic diagnosis through dynamic integration of genomic and clinical data
Annual Review of Genomics and Human Genetics -
News
ELSI in Review • May 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our May 2024 set explores parental perspectives on early life… -
Publication
Voices of GA4GH members: Collaborating in technology and policy development
Cell Genomics -
Publication
“Extremely slow and capricious”: A qualitative exploration of genetic researcher priorities in selecting shared data resources
Genetics in Medicine -
Publication
Ethical considerations for genetic research in low-income countries: Perceptions of informed consent, data sharing, and expectations in Nicaragua
European Journal of Human Genetics -
Video
Law Enforcement and Genetic Data: A Discussion for Journalists
Law Enforcement and Genetic Data: A Discussion for Journalists • October 26, 2021 This is the second in a series "Genomics in Society: New Developments, New Questions: Discussions with…- Law Enforcement
- Genetic Data Sharing and Management
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Additional Resource
Regulatory & Ethics Toolkit, Global Alliance for Genomics and Health (GA4GH)
The Regulatory & Ethics Toolkit produced by the Global Alliance for Genomics and Health (GA4GH) contains ready-to-use regulatory and ethics guidance for genomic and health-related data sharing…- GA4GH
- policy-framing
- genomic data
- Human Rights
- genomic data sharing
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Publication
Pediatric cancer data commons: Federating and democratizing data for childhood cancer research
JCO Clinical Cancer Informatics