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California State Statute (California: Cal. Health and Safety Code § 24170 et seq. )
Provides for the protection of human subjects participating in medical experiments. Enacts the Experimental Subject's Bill of Rights, which details informed consent requirements.- state statute
- statute
- California
- human subjects protection
- medical experiments
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Video
ELSIcon2024: Whose Science? Whose Knowledge? Equitable Partnerships and Diverse Teams for Just Genomic Research
ELSIcon2024 • Panel • June 10, 2024 Authors: Corresponding Author: Shawneequa Callier, MA JD – The George Washington University Panelist: Lori B. Chibnik – Harvard University…- ELSIcon2024
- 6th ELSI Congress
- Biobanking and genomic databases
- Community Engagement
- equity and justice in genetics
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Video
ELSIcon2022 Paper: Navigating community engagement in clinical trial research
ELSIcon2022 • Paper • June 1, 2022 Mikaella Caruncho, Jennifer James, Galen Joseph In recent years, community engagement approaches to genomic research have grown in popularity, motivated by…- Live
- Paper
- Recruiting diverse participants to precision medicine research
- genomics research
- Biobanks
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Additional Resource
Consensus Study Report, Cord Blood: Establishing a National Hematopoietic Stem Cell Bank Program, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2005)
This National Academies Press publication offers advice from experts in the fields of economics, public health, medicine, and biostatistics on the optimal structure for a national cord blood program…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Tissue economies: Blood, organs and cell lines in late capitalism
Duke University PressDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Publication
The best interests of the child and the return of results in genetic research: International comparative perspectives
BMC Med EthicsClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): 1R21HG006612-01 -
Publication
Genetic testing, adverse selection, and the demand for life insurance
American Journal of Medical Genetics -
Additional Resource
New York 2020 State Bills (New York 2020 S7505)
Declares that it is the policy of the state and all its political subdivisions to ensure a fair, non-biased compensation structure for all employees. Status within one or more protected class or…- state bill
- bill
- bill status enacted
- New York
- employment nondiscrimination