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Publication
Perspectives from a predominantly African American community about biobank research and a biobank consent form
Ethics & Human ResearchSedig and colleagues identified trust as the most common theme in transcripts of focus group discussions about the consent form for the University of Michigan Medical School Central Biorepository.… -
Additional Resource
Workshop Proceedings, Establishing Precompetitive Collaborations to Stimulate Genomics-Driven Product Development, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2011)
This National Academies Press publication summarizes the proceedings of a workshop that explored the impact of intellectual property protections on industry, academia, and government partnerships for…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Publication
Under surveillance: Genetic privacy in Margaret Atwood’s MaddAddam Trilogy
Journal of Literature and ScienceThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009015 -
Publication
Avoiding liability and other legal land mines in the evolving genomics landscape
Annual Review of Genomics and Human GeneticsClayton, Tritell, and Thorogood consider the legal implications of rapid changes in scientific knowledge and the cultural and political environment for clinicians and researchers. -
Publication
The UN Declaration on the Rights of Indigenous Peoples and genomics: Ethical complementarity for just research
Hastings Center Report -
Publication
Open science practices in psychiatric genetics: A primer
Biological Psychiatry: Global Open Science -
Publication
Lack of diversity in genomic databases is a barrier to translating precision medicine research into practice
Health Affairs -
Publication
The profile of articles on AXIN2 mutations, oligodontia, and ethical statements in dental research
Journal of Empirical Research on Human Research Ethics -
Publication
Research on the clinical translation of health care machine learning: Ethicists experiences on lessons learned
American Journal of Bioethics -