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Publication
What will "All of Us" mean for each of us
SciTech LawyerThe Center for Genetic Privacy and Identity in Community Settings (GetPreCiSe). Grant number(s): RM1HG009026 -
News
Using a Family Advisory Council to Understand the Informational Needs of Prospective Gene Therapy Trial Participants: An Interview with the Co-PIs of the SCDGENE CERA Working Group
Sickle cell disease (SCD), characterized by severe pain crisis and progressive organ damage as well as early death, is one of the most common inherited blood disorders in the world. However, since 90…- sickle cell disease
- gene therapy
- Sickle Cell
- gene therapies
- community based participatory research
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Job Posting
Clinical Bioethicist
Responsibilities: -Clinical ethics consultation service: 18-20 on-call weeks including both 24/7 primary and daytime-only call responsibilities. -Travel to Main Campus and regional hospitals across…- Clinical Ethics
- Bioethics
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Publication
Providing genetic testing and genetic counseling for Parkinson’s disease to the community
Genetics in Medicine -
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Grant Abstract
Information Conference on the Human Genome Project
This project is an Information Conference on the Human Genome Project: The Challenges and Impact of Human Genome Research for Minority Communities. This two day conference is designed primarily for…- African American
- Asian Americans
- Ethnic group
- Genome
- Health education
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Grant Abstract
Organizational and Cultural Dynamics in Genomics Companies: Industry Engagement in Navigating Social and Ethical Issues
This Pathway to Independence Award (K99/R00) investigates and leverages perspectives from members of the health-related private sector genomics industry, to develop guidance for improving approaches…- Address
- Agreement
- American
- Area
- Attention
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Grant Abstract
Organizational and Cultural Dynamics in Genomics Companies: Industry Engagement in Navigating Social and Ethical Issues
This Pathway to Independence Award (K99/R00) investigates and leverages perspectives from members of the health-related private sector genomics industry, to develop guidance for improving approaches…- Address
- Agreement
- American
- Area
- Attention