Organizational and Cultural Dynamics in Genomics Companies: Industry Engagement in Navigating Social and Ethical Issues
Institution: JOHNS HOPKINS UNIVERSITY
FOA Number: PA-18-398
Abstract
This Pathway to Independence Award (K99/R00) investigates and leverages perspectives from members of the health-related private sector genomics industry, to develop guidance for improving approaches to social and ethical issues in the industry. It does so through in-depth qualitative analysis (interviews, cases studies, comparative analysis), scholarly normative analysis (drawing on theories from bioethics and business ethics), and a Delphi process of iterative questionnaires with industry stakeholders, aimed at strategizing concrete change regarding social obligations of the industry. The research and training program is designed to contribute to a more just distribution of the benefits of genomic technologies.
FUNDING AGENCY:
Funder:
NIH
Institute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTE
Funding Type:
K99
Project Number:
K99HG010499
Start Date:
Sep 12, 2019
End Date:
Aug 31, 2021
PROJECT TERMS:
Address, Agreement, American, Area, Attention, Award, Back, base, Bioethics, Bioethics Consultants, biotechnology, Boston, Businesses, California, career development, Case Study, comparative, Comparative Study, Complement, Corporate Ethics, curative treatments, Decision Making, Delphi Study, design, Development, Development Plans, Diagnostic, DNA, drug development, Empirical Research, Employee, Entrepreneurship, Ethical Issues, Ethics, experience, Face, gene therapy, Genetic, genome editing, Genomic approach, Genomics, Goals, Government, Health, Health Technology, improved, India, Individual, individual response, Industrialization, Industry, Inequality, innovation, insight, Intervention, Interview, Investigation, Justice, licensing, Light, Link, Machine Learning, member, Methods, Modeling, National Human Genome Research Institute, nebula, next generation sequencing, novel diagnostics, novel therapeutics, operation, Pathway interactions, Patients, Perception, Phase, Play, Policies, population health, Price, Privacy, Private Enterprises, Private Sector, Privatization, Process, programs, Public Health, Questionnaires, Research, research and development, Research Priority, Research Project Grants, Research Training, Role, Scholarship, Schools, Science, Shapes, Silicon, Site, social, Social Justice, Social Obligations, Social Responsibility, South Africa, South African, Strategic Planning, Structure, Technology, theories, Therapeutic, Training, Training Activity, Training Programs, training project, Universities, Work