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NIH Sep 12, 2019 | K99

Organizational and Cultural Dynamics in Genomics Companies: Industry Engagement in Navigating Social and Ethical Issues

Principal Investigator(s): WALKER, ALEXIS

Institution: JOHNS HOPKINS UNIVERSITY

FOA Number: PA-18-398

Abstract

This Pathway to Independence Award (K99/R00) investigates and leverages perspectives from members of the health-related private sector genomics industry, to develop guidance for improving approaches to social and ethical issues in the industry. It does so through in-depth qualitative analysis (interviews, cases studies, comparative analysis), scholarly normative analysis (drawing on theories from bioethics and business ethics), and a Delphi process of iterative questionnaires with industry stakeholders, aimed at strategizing concrete change regarding social obligations of the industry. The research and training program is designed to contribute to a more just distribution of the benefits of genomic technologies.

FUNDING AGENCY:

Funder:
NIH

Institute:
NATIONAL HUMAN GENOME RESEARCH INSTITUTE

Funding Type:
K99

Project Number:
K99HG010499

Start Date:
Sep 12, 2019

End Date:
Aug 31, 2021

PROJECT TERMS:

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