Topics

Case and colleagues developed an educational intervention (CRiTICS) for providers' communication of a positive prenatal genetic screening result. The REDCap codebook for this study outlines…

REDCap codebook for the project "Carrier Screening Decision-making: An Experimental Study of Media Influences on Conversational Development and Outcomes." The codebook outlines each data…

This project evaluated simplified tools used to inform the public around the consent process. The data dictionary for this study outlines the structure, content, and variable definitions for the…

The aim of this study was to develop a gaming prototype for decision making about pre-implantation genetic screening (PGS) with in vitro fertilization. The REDCap codebook for this study outlines…

This survey was administered to pediatricians' during pediatric grand rounds to assess understanding of children's health rights. The data dictionary for this study outlines the structure,…

Rothwell and colleagues surveyed patients to assess the financial burden of genetic testing. The REDCap codebook for this study outlines each data element of the survey, including the questions…

Case and colleagues developed an educational intervention (CRiTICS) for providers' communication of a positive prenatal genetic screening result. The data dictionary for this study outlines the…

This project evaluated simplified tools used to inform the public around the consent process. The REDCap codebook for this study outlines each data element of the survey, including the questions…

Mowery and colleagues conducted a descriptive study characterizing the influence of genetic testing on redirecting care for neo-nates. The data dictionary for this study outlines the structure,…

This study assessed the impact of a video and survey about expanded carrier screening on patient knowledge and decision making. The data dictionary for this study outlines the structure, content, and…