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Publication
Queering genomics: How cisnormativity undermines genomic science
HGG AdvancesThrough the lens of queer theory, Jamal and colleagues explore how imprecise practices for collecting sex and gender data and conducting genomic research have contributed to the stigmatization of… -
Video
ELSIcon2022 Paper: COVID, Prenatal Genetic Testing, and the Digital Divide: Beyond Technology
ELSIcon2022 • Paper • June 2, 2022 Ruth M. Farrell, Christina Collart COVID and the events of the past year have brought to light the insidious issues of systemic racism, disparities, and…- Live
- Paper
- Access to genetic screening and therapies
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Video
A Qualitative Study to Develop a Privacy and Nondiscrimination Best Practice Framework for Personalized Wellness Programs
Rachele Hendricks-Sturrup, DHSc, MSc, MA - Harvard Pilgrim Health Care Institute and Harvard Medical School ELSIconversations - February 26, 2021 Employers are increasingly partnering with direct-…- Direct to Consumer Genetic Testing
- direct to consumer marketing
- Wellness programs
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Publication
Rapid Genetic Testing in Pediatric and Neonatal Critical Care: A Scoping Review of Emerging Ethical Issues
Hospital Pediatrics -
Additional Resource
Florida 2019 State Bills (Florida 2019 SB 258)
Prohibits life insurers, long-term care insurers, and disability income insurers from certain actions relating to genetic information or genetic testing of applicants. Prohibits these insurers from…- state bill
- bill
- Florida
- life insurance nondiscrimination
- genetic testing
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Publication
A children's rights framework for genomic medicine: Newborn screening as a use case
Medical Research Archives -
Publication
Commonalities and contrasts: North American program directors' perspectives on genetic counseling education
J Genet CounsUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Comparing the frequency of variants of uncertain significance (VUS) between ancestry groups in a paediatric epilepsy cohort
Journal of Medical Genetics -
Publication
The use of person-centered language in scientific research articles focused on autism
Journal of Developmental & Behavioral Pediatrics