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Grant Abstract
Decision Making in Young Women at Risk for HBOC
Young women with a positive BRCA1 and/or BRCA2 mutation test face a potentially deadly genetic legacy at a developmental critical time in their lives. After learning they are at a high risk for…- behavioral /social science research tag
- brca gene
- breast neoplasms
- Clinical Research
- Decision Making
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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
PROJECT NARRATIVE Little is known about how health care providers (HCPs) will react to, and use, genomic information in patient care. The goal of this study is to understand how genomic information…- Address
- barrier to care
- base
- Behavior
- biobank
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Grant Abstract
Dyadic Influence in Genomic Medicine: Couples' Beliefs, Disclosures, & WEllbeing
Genomic medicine has, on one hand, the power to predict potentially debilitating disease before its actual onset; on the other hand, it creates challenges for patients in determining how to assess…- Adult
- Affect
- alpha 1-Antitrypsin Deficiency
- base
- Behavior Therapy
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Grant Abstract
Health Care Provider Responses to Receiving Unsolicited Genomic Results
Background: There is great interest in the implementation of genomic medicine, i.e., using genomic information to inform patient care. As a result, patients with medically actionable (preventable and…- barrier to care
- base
- Behavior
- biobank
- cancer therapy
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Grant Abstract
Informed Consent and Data Access Issues in State-based Biobanks
The ethical, legal, and social issues (ELSI) underlying the development and implementation of state-sponsored birth cohort studies and their accompanying biobanks are complex and potentially volatile…- Adult
- Affect
- Anxiety
- Area
- Attitude
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Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
PROJECT NARRATIVE The sickle cell trait (SCT) screening program of the National Collegiate Athletic Association (NCAA) is regarded as one of the largest mandated genetic screening programs in the…- Address
- Adopted
- Affect
- African American student
- Area
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Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
In 2010 the National Collegiate Athletic Association (NCAA) adopted a mandatory sickle cell trait (SCT) screening policy for student-athletes in its Division I (DI) colleges and universities.…- Adopted
- Affect
- African American student
- Area
- Athletic
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Grant Abstract
Implementation and Implications of Sickle Cell Trait Screening in the NCAA
PROJECT NARRATIVE The sickle cell trait (SCT) screening program of the National Collegiate Athletic Association (NCAA) is regarded as one of the largest mandated genetic screening programs in the…- Address
- Adopted
- Affect
- African American student
- Area
-
Publication
The new brain sciences: Perils and prospects
Cambridge University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Psychosocial genetic counseling
Oxford University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…