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Grant Abstract
Conference - Genetic Disease Research Need /Opportunity
The annual meeting of the American College of Medical Genetics (ACMG) brings together a large proportion of basic and clinical investigators of rare genetic diseases. The organizers propose a series…- Advertising
- Air
- American
- Area
- Biological
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Additional Resource
Missouri State Statute (Missouri: MRS §§375.1300 and 375.1303 )
An insurer in making any underwriting decision may not (1) require or request a person or his/her blood relative to provide genetic information or take a genetic test, (2) inquire about a genetic…- state statute
- Missouri
- health insurance nondiscrimination
- genetic privacy
- disability
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News
EFF Resources - Enhancing Genetic Screening Access through Community Partnerships in the Cleveland African American Prostate Cancer Project
Session Title: Enhancing Genetic Screening Access through Community Partnerships in the Cleveland African American Prostate Cancer Project Date and time: Friday, March 14, 2025 | 12pm ET US /… -
Grant Abstract
Preparing for Genomic Editing Technologies: An Anticipatory Approach
Human genome editing is a powerful tool for creating precise changes to the genome, an organism+D6s complete set of genetic material. With these advances has come an explosion of interest in the…- Address
- Adopted
- base
- Basic Science
- Belief
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Additional Resource
Massachusetts State Statute (Massachusetts: MGL 175 §§108I and 120 E)
An insurer, agent or broker authorized to issue life insurance policies, policies against disability from injury or disease or policies for long-term care may not practice unfair discrimination…- state statute
- Massachusetts
- disability
- nondiscrimination
- genetic information
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News
Announcing Accessibility Upgrades at CERA
CERA is pleased to share that we have concluded a two-year comprehensive auditing and improvement process of our website, ELSIhub.org, with the support of both the Stanford Office of Digital… -
Additional Resource
New Jersey State Statute (New Jersey: NJS § 17B:30-12)
No person may discriminate against an individual based on genetic information or the refusal of a genetic test with respect to hospital confinement or other supplemental limited benefit insurance. No…- state statute
- New Jersey
- health insurance nondiscrimination
- disability
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Video
ELSIcon2024: Incorporating Equity Considerations in Health Technology Assessment and Funding of Genome Medicine Technologies in Ontario, Canada
ELSIcon2024 • Paper • June 10, 2024 Authors: Speaker: Wendy J. Ungar, MSc, PhD (she/her/hers) – The Hospital for Sick Children Research Institute (Canada) Genome medicine (GM)…- ELSIcon2024
- 6th ELSI Congress
- equity and justice in genetics
- precision medicine
- Public Health
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Additional Resource
Oklahoma State Statute (Oklahoma: OS §36-3614.4 )
The statutes related to research apply to genetic research studies approved by an institutional review board as defined in 21 CFR, § 50 or conducted subject to the requirements of the federal common…- state statute
- Oklahoma
- disability
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Additional Resource
Montana State Statute (Montana: MCA §33-18-901 et seq.)
An insurer, health service corporation, health maintenance organization, fraternal benefit society, or other issuer of an individual or group policy or certificate of insurance may not discriminate…- state statute
- Montana
- health insurance nondiscrimination
- disability