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561 - 570 of 7243 Topics
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Grant Abstract
Challenges of Informed Consent in Return of Data from Genomic Research
Genomic data, including findings incidental to the purpose for which a study is undertaken, can contain information of use and importance to research subjects related to their health, lifestyle, and…- Access to Information
- Address
- Adverse effects
- adverse outcome
- Alzheimer's Disease
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Publication
A mixed-methods protocol to develop and validate a stewardship maturity matrix for human genomic data in the cloud
Frontiers in Genetics -
Publication
Clinical challenges in management of familial adenomatous polyposis and hereditary nonpolyposis colorectal cancer
Cancer Supplement -
Research Tool
Vignette for Exploring the Importance of Shared Decision Making about Genomic Research Participation
Bukini and colleagues designed the vignette used in theis study to explore the importance of shared decision making about research participation in Ghana and Cameroon. The vignette, available in the… -
Collection
Addressing Algorithmic Unfairness in Healthcare Artificial Intelligence
Artificial intelligence (AI) healthcare technology can solve our most complex and intransigent health issues. It has the potential to enhance healthcare quality, improve access, reduce cost, and…- Artificial intelligence
- Data Set
- Data Collection
- Big Data
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Publication
Pharmacogenomic data sample collection and storage: Ethical issues and policy approaches
PharmacogenomicsDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Genetics Legislation: Syntax, Science and Policy
Although scholars have offered valuable policy recommendations, lawmakers lack a source of comprehensive, clear, and unbiased research concerning the ethical, technical, and legal issues that…- employment /unemployment
- family structure /dynamics
- Genetics
- health care policy
- health insurance
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Publication
Formative evaluation of the families SHARE disease risk tool among low-income African Americans
Public Health Genomics