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Publication
Fostering ethical, legal, and social implications research in tribal communities: The Center for the Ethics of Indigenous Genomic Research
Journal of Empirical Research on Human Research Ethics -
Grant Abstract
Social Marketing and Cancer Genetics among Hispanics
To realize the benefits of recent advances in cancer genetics, it is critical to identify and refer families in greatest need of genetic counseling and testing services. BRCA1/2 mutations that place…- Attitude
- Behavior
- Clinical Research
- Ethnic group
- Family
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Grant Abstract
Partnership for Genetic Services
This program will develop a model project, aimed at increasing the likelihood that persons affected by genetic conditions receive quality family-centered and culturally sensitive medical care. This…- education evaluation /planning
- genetic disorder
- health care model
- health care service planning
- health services research tag
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Publication
Availability of genetic tests in public health services in Brazil: Data from the Brazilian Rare Diseases Network
Public Health Genomics -
Publication
Impact of BRCA1/2 cascade testing on anxiety, depression, and cancer worry levels among unaffected relatives in a multiethnic Asian cohort
Journal of Genetic Counseling -
Publication
Capacity-building for stroke genomic research data collection: The African neurobiobank ethical, legal, and social implications project experience
Biopreservation and Biobanking -
Publication
The stories behind the art—Malformations and Hindu mythology
American Journal of Medical Genetics Part C: Seminars in Medical Genetics -
Publication
Does lack of "genetic-relative family health history" represent a potentially avoidable health disparity for adoptees?
Am J BioethClinical Sequencing Evidence-Generating Research (CSER) Consortium -
Publication
An ambitious goal: A grounded, informed, and compelling theological bioethics
Hastings Center Report -
Publication
Sample genetic policy language for research conducted with native communities
J Cancer Educ