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ELSI in Review • December 2024
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our December 2024 set explores ethical aspects of human…- Noninvasive prenatal testing
- pharmacogenomics
- Genetic Testing
- precision medicine
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Publication
Forensic genetics in the shadows
Journal of Law and the Biosciencesby Teneille Brown, Sarah Duensing, & Bob Wong -
Publication
Do we care? Reporting of genetic diagnoses in multidisciplinary intellectual disability care: A retrospective chart review
Orphanet J Rare Dis. -
Publication
Factors affecting couples’ decision-making about expanded prenatal cell-free DNA screening
Genetics in Medicine Open -
Publication
Content of first prenatal visits
Matern Child Health JUniversity of Utah Center of Excellence in ELSI research (UCEER). Grant number(s): RM1HG009037 -
Publication
Sorry you asked? Mayo, Myriad, and the battles over patent-eligibility
Journal of Law and the Biosciences -
Publication
What matters to parents? A scoping review of parents' service experiences and needs regarding genetic testing for rare diseases
European Journal of Human Genetics -
Publication
Evaluation of CTRL: A web application for dynamic consent and engagement with individuals involved in a cardiovascular genetic disorders cohort
European Journal of Human Genetics