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Publication
Children's health and children's rights
Martinus NijhoffDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Actionable Ethics Oversight for Human-Animal Chimera Research
PROJECT NARRATIVE Advances in genome editing, embryology, and stem cell science are making it possible to imagine, and create, new kinds of human-animal chimeras that are both more biologically and…- Adopted
- animal breeding
- Animal Experimentation
- Animal Welfare
- Animals
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Grant Abstract
Assessing Attitudes and Experiences of Early Adopters of Personalized Genomics
Completing the Human Genome and the Human HapMap Projects has enabled studies associating genetic variation with complex diseases such as various cancers, coronary artery disease, and diabetes. This…- Access to Information
- Accounting
- Address
- Area
- Attention
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Grant Abstract
Engaging adolescents in decisions about return of genomic research results
PROJECT NARRATIVE: Recent recommendations to return children?s results for adult-onset conditions to parents anytime whole exome or genome sequencing is performed, as well as growing expectations to…- Address
- Adolescent
- Adult
- Age
- American
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Grant Abstract
Preparing for Genomic Editing Technologies: An Anticipatory Approach
PROJECT NARRATIVE Human genome editing is a powerful tool for creating precise changes to the genome, the complete set of genetic material. However, human genome editing raises significant ethical,…- Address
- Adopted
- base
- Basic Science
- Belief
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
PROJECT NARRATIVE Health systems could work with genetic patients by directly notifying relatives who receive care in the same health system, but no U.S.-based care models have emerged and many…- actionable mutation
- Address
- base
- behavior test
- brca gene
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Grant Abstract
Emerging Issues In Criminal Forensic Genetics
Criminal DNA profiling could soon include phenotypic markers for attributes such as eye, skin, and hair color, gait, ancestry, and predisposition to behavioral traits such as smoking. This technology…- Alcoholism
- Appearance
- Attention
- Australia
- Behavioral
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
Genetic testing has a multigenerational impact, as actionable pathogenic variants can identify multiple family members at risk. Currently in the United States, a person at actionable risk through…- actionable mutation
- Address
- base
- behavior test
- BRCA1 gene
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Grant Abstract
Health care system-led familial risk notification: design and ethical assessment
PROJECT NARRATIVE Health systems could work with genetic patients by directly notifying relatives who receive care in the same health system, but no U.S.-based care models have emerged and many…- actionable mutation
- Address
- base
- behavior test
- BRCA1 gene
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Grant Abstract
Ethically responsible clinical decision support for Lynch Syndrome screening
Dr. Korngiebel's long-term goal is to become an independent researcher at the intersection of bioethics, informatics, and genetic testing. To work toward this goal, she will receive rigorous…- Address
- Administrator
- Age
- Area
- base