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571 - 580 of 7243 Topics
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Publication
Investigator experiences and attitudes about research with biospecimens
J Empir Res Hum Res Ethics -
Publication
A public backlash towards genomics is a risk all of us working in genomics must share
The Lancet Regional Health - Europe -
Publication
Data access, ownership, and control: Toward empirical studies of access practices
Knowledge: Creation, Diffusion, Utilization -
Research Tool
Data Dictionary: ENLITE - Evaluating the Benefits and Limitations of Next Generation DTC
Kilbride and colleagues developed this data dictionary for the ENLITE Study. The ENLITE study explored public perceptions and knowledge of direct-to-consumer genetic testing. The data dictionary for… -
Research Tool
Data Dictionary: Newborn Screening Education
This study investigated the efficacy and impact of prenatal education about newborn screening and use of residual dried blood spots (DBS) in research. The data dictionary outlines the structure,… -
News
ELSI in Review • February 2025
About this listing ELSI in Review is a listing of recently published reviews of the literature on key ELSI topics curated by CERA staff. Our February 2025 set explores experiences of perinatal… -
Publication
Clinical management where medicine meets management. Array of hope
Health Service JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Policy Statements, European Society of Human Genetics
The Public and Professional Policy Committee (PPPC) of the European Society of Human Genetics (ESHG), chaired by Francesca Forzano, discusses and issues statements on the responsible translation of…- Human Genetics
- Policy
- position statements
- Research
- debate
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Grant Abstract
Social and Policy Issues in Genetic Technology Transfer
The broad goal of the research proposal is to identify factors that either promote or inhibit the development, by scientists, of new genetic technologies relevant to health care and to consider the…- Attitude
- behavioral /social science research tag
- Data Collection
- data collection methodology /evaluation
- Ethics
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Publication
Public perspectives on the use of different data types for prediction in healthcare
Journal of the American Medical Informatics Association