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Publication
Moving beyond Bermuda: Sharing data to build a medical information commons
Genome ResDuke University Center for Public Genomics. Grant number(s): P50HG003391 -
Additional Resource
Joint Position Statement, The Use of Genome‐wide Sequencing for Fetal Diagnosis, International Society for Prenatal Diagnosis (ISPD), the Society for Maternal Fetal Medicine (SMFM), and the Perinatal Quality Foundation (PQF)
This Joint Position Statement from the International Society for Prenatal Diagnosis (ISPD), the Society for Maternal Fetal Medicine (SMFM), and the Perinatal Quality Foundation (PQF) includes a…- position statement
- International Society for Prenatal Diagnosis
- ISPD
- Society for Maternal Fetal Medicine
- SMFM
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Additional Resource
Workshop Proceedings, Improving Genetics Education in Graduate and Continuing Health Professional Education, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2015)
This report summarizes the proceedings of a workshop hosted by the Roundtable on Translating Genomic-Based Research for Health of the Institute of Medicine on August 18, 2014. The workshop explored…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Workshop Proceedings, Strategies for Engagement of Non-Traditional Partners in the Research Enterprise, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2018)
This National Academies Press publication summarizes the proceedings of a workshop that explored issues associated with partnerships between government, university, and industry in the U.S. research…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Video
ELSIcon2022 Paper: The Ethical, Legal, and Social Implications of Stroke Genomic and Biobanking Research in Sub-Saharan Africa: Community Member Perspectives and Factors for Consideration
ELSIcon2022 • Paper • June 2, 2022 Michelle Nichols, Arti Singh, Olorunyomi Olorunsogbon, Ezinne Uvere, Mayowa Ogunronbi, Sylvia Melikam, Joshua Akinyemi, Kolawole Wahab, Albert Alpalu, Fred S…- Live
- Paper
- Attitudes about sharing biological samples and health data
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Research Tool
Genetics Post-Course Survey (Not-Genotyped)
Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine after taking an 8-week course on genomics and personalized medicine.… -
Research Tool
Genetics Post-Course Survey (Genotype Data)
Salari and colleagues designed this survey to measure student attitudes and knowledge about genomics and personalized medicine after taking an 8-week course on genomics and personalized medicine.… -
Publication
Genomic medicine: The sorcerer's new broom?
WJM: Western Journal of MedicineDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Workshop Proceedings, Therapeutic Development in the Absence of Predictive Animal Models of Nervous System Disorders, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2017)
This report summarizes the proceedings of a series of workshops the National Academies of Sciences, Engineering, and Medicine held from 2012 to 2016. These workshops explored the challenges that were…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding
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Additional Resource
Consensus Study Report, Oversight and Review of Clinical Gene Transfer Protocols: Assessing the Role of the Recombinant DNA Advisory Committee, the National Academies of Sciences, Engineering, and Medicine (NASEM) (2014)
The Institute of Medicine of the National Academies authored this 2014 assessment of the oversight function of the NIH and the NIH Recombinant DNA Advisory Committee (RAC) over human gene transfer…- NASEM
- ELSI
- report
- consensus study
- workshop proceeding