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Publication
Disabling barriers, enabling environments
SageDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
The commercialization of genetic research: Ethical, legal, and policy issues
Kluwer Academic/PlenumDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Genetic databases: Socio-ethical issues in the collection and use of DNA
RoutledgeDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Grant Abstract
Surfacing values in the economic evaluation of genomic sequencing for diagnosis of children with rare diseases
PROJECT NARRATIVE Though any single rare disease is by definition uncommon, together these diseases affect nearly 30 million individuals in the United States, two-thirds of whom are children, and…- Affect
- Anthropology
- base
- Bioethics
- career
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Grant Abstract
Respect for Persons in the Genomics Research Enrollment Process: Incorporating Diverse Experiences and Attitudes
PROJECT NARRATIVE This project will identify ways to demonstrate respect to prospective research participants that incorporate the perspectives of diverse patient populations who have been…- Advisory Committees
- Asians
- Attitude
- Award
- base
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Grant Abstract
GUIDE: Genomic Uses in Infectious Diseases and Epidemics
Genomic information offers the opportunity for "personalized prevention" in both clinical practice and public health settings. To date, such efforts have focused primarily on chronic…- Acute
- Address
- Adverse effects
- Attention
- Behavioral
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Grant Abstract
Impact of Psychiatric Genetic Data on Civil Litigation and its Relationship with Stigma
Advances in psychiatric genetics are likely to offer major diagnostic and therapeutic benefits, but also legal and social-related risks, to individuals who were diagnosed with, or have a proclivity…- Address
- Advocate
- Affect
- Area
- Attitude
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Grant Abstract
Respect for Persons in the Genomics Research Enrollment Process: Incorporating Diverse Experiences and Attitudes
Stephanie Kraft, JD, is an Acting Instructor in the Division of Bioethics, Department of Pediatrics, University of Washington School of Medicine. She has a background in law and economics and has…- Advisory Committees
- Asians
- Attitude
- Award
- base
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Publication
Ethics in medical research: A handbook of good practice
Cambridge University PressDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Ethics in population-based genetic research
Accountability in ResearchDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National…