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Publication
The prevalence of genetic discrimination in the Huntington Disease community and the impact of genetic counseling discussions about discrimination
Journal of Genetic CounselingDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Collection
Realizing the Self-Determination Goals of Indigenous People in Genetics Research
Self-determination and tribal sovereignty are core concepts in the lives and histories of Indigenous Peoples. Within the United States, the peoples of the American Indian and Alaska Native tribes are…- Indigenous Peoples
- Genetics Research
- data sovereignty
- Indigenous Communities
- Community Engagement
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Grant Abstract
Developing Clinical Translational Tools to Communicate Genetic Risk to Individuals who are at Clinical High Risk for Psychosis
While great strides are being made in identifying early signs that place people at a ?high risk state? for different illness conditions, at the same time, advances are being made in the…- Abbreviations
- Address
- Age
- Attenuated
- base
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Publication
Committing to genomic answers for all kids: Evaluating inequity in genomic research enrollment
Genetics in Medicine -
Publication
Are there differences in perceptions, preferences and attitudes towards disclosure of genetic testing for stroke? A qualitative study among stroke-free SIREN-SIBS genomics study participants
Journal of Stroke and Cerebrovascular Diseases -
Publication
Hereditary cancer panel testing challenges and solutions for the Latinx community: Costs, access, and variants
J Community GenetClinical Sequencing Evidence-Generating Research (CSER) Consortium. Grant number(s): R01 CA221870, U01 HG009599 -
Publication
The All of Us Data and Research Center: Creating a secure, scalable, and sustainable ecosystem for biomedical research
Annual Review of Biomedical Data Science -
Publication
A scenario-based methodology for analyzing the ethical, legal, and social issues in genomic data sharing
Journal of Empirical Research on Human Research Ethics