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Publication
Gene therapies: The challenge of super-high-cost treatments and how to pay for them
Regenerative Medicine -
Grant Abstract
Understanding the Expectations and Needs of Diverse Communities for Navigating Research Results
PROJECT NARRATIVE This application builds on the R01 study the Ethics of Inclusion: Diversity in Precision Medicine Research and aims to investigate the preferences of African American and Hispanic/…- Address
- African American
- All of Us Research Program
- American
- behavioral health
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Additional Resource
Oregon 2013 State Bills (Oregon 2013 HB 2240 )
Aligns Oregon health insurance law with changes in federal law and renumbers sections of Oregon law pertaining pre-existing condition, which are defined not to include genetic information in the…- state bill
- bill
- bill status enacted
- Oregon
- health insurance nondiscrimination
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Additional Resource
North Dakota 2011 State Bills (North Dakota 2011 SB 2067)
This bill amends the statute that allows the health council to authorize the use of newborn metabolic screening tests for legitimate research purposes by broadening the term "newborn metabolic…- state bill
- bill
- bill status enacted
- North Dakota
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Additional Resource
Nebraska State Statute (Nebraska: NRS §§44-6910 et seq. )
A health benefit plan may not treat genetic information as a pre-existing condition in the absence of a diagnosis. A health carrier may not establish rules for eligibility and continued eligibility…- state statute
- Nebraska
- health insurance nondiscrimination
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Additional Resource
Missouri 2007 State Bills (Missouri 2007 HB 364)
This bill, as substituted by the Senate, prohibits the treatment of genetic information as a preexisting condition in the absence of a diagnosis and prevents the establishment of rules for…- state bill
- bill
- bill status died
- Missouri
- health insurance nondiscrimination
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Additional Resource
Michigan 2013 State Bills (Michigan 2013 SB 178)
Requires a workgroup to develop a standard prior written authorization methodology for prescribers. If the workgroup develops a paper form, it must allow an insurer to request and require additional…- state bill
- bill
- bill status enacted
- Michigan
- health insurance nondiscrimination
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Additional Resource
Maryland 2014 State Bills (Maryland 2014 HB 1120)
Requires the Motor Vehicle Administration to offer to an applicant for a driver's license, identification card, or moped operator's permit the opportunity to upgrade to an enhanced…- state bill
- bill
- bill status died
- Maryland
- Motor Vehicle Administration
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Additional Resource
Maine 2013 State Bills (Maine 2013 LD 1345)
Requires the Maine Health Care Agency to establish an affordability assurance program. The program must include rates of payment for various medical tests to detect or evaluate disease and to…- state bill
- bill
- bill status vetoed
- Maine
- Maine Health Care Agency
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Additional Resource
Indiana State Statute (Indiana: IC § 16-41-17-10)
The state health department must develop a system for using, for epidemiological survey and research purposes, any waste blood specimen left over after newborn screening. Waste blood specimens used…- state statute
- Indiana
- Newborn screening
- epidemiological survey
- waste blood specimen