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Publication
Preimplantation genetic diagnosis, reproductive freedom, and deliberative democracy
Journal of Medicine and PhilosophyDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Publication
Drug development: Assessment of pharmacogenetic studies by Spanish research ethics committees
Pharmacogenomics JournalDigital citation created by the Bioethics Research Library, Georgetown University, for the National Information Resource on Ethics and Human Genetics, a project funded by the United States National… -
Additional Resource
Mississippi 2016 State Bills (Mississippi 2016 HB 985)
Creates the parental authority act. Parental rights include the he right to be notified in advance and to refuse or to consent in writing before any record of the minor child's blood or…- state bill
- bill
- bill status died
- Mississippi
- genetic privacy
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Additional Resource
Maryland 2010 State Bills (Maryland 2010 HB 1351)
This bill amends provisions of law that relate to the use of genetic tests and genetic information by an insurer, nonprofit health service plan, or health maintenance organization. The bill also…- state bill
- bill
- bill status died
- Maryland
- health insurance nondiscrimination
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Video
ELSIcon2022 Paper: Whose future should we worry about?
ELSIcon2022 • Paper • May 27, 2022 Elisa Calleja When talking about genetic research, one of the goals is to successfully intervene in germinal cells and eliminate genetic diseases, so that…- Emerging technologies - public opinion and policy
- Gene therapy and gene editing
- Paper
- Pre-Recorded
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Grant Abstract
History of Breast Cancer Risk, 1900-Present
This project is focused on the ways in which two diagnostic technologies--screening mammography and genetic testing--emerged, diffused, interacted with medical and social thought and values, and…- behavioral /social science research tag
- breast neoplasm /cancer diagnosis
- breast neoplasms
- cancer prevention
- cancer risk
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Grant Abstract
Consumer Perspectives on the Promise of CF Gene Therapy
In this study, the Education Development Center, Inc., in collaboration with the International Association of Cystic Fibrosis Adults (IACFA), Temple University, St. Vincent's Hospital, and…- Attitude
- behavioral /social science research tag
- Belief
- Clinical Research
- Cystic Fibrosis
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Additional Resource
Montana 2010 State Bills (Montana 2010 HB 128)
This bill amends the health insurance statutes and prohibits a group health plan or a health insurance issuer offering group health insurance coverage from imposing a preexisting condition exclusion…- state bill
- bill
- bill status died
- Montana
- health insurance nondiscrimination
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Additional Resource
Oregon 2007 State Bills (Oregon 2007 SB 244)
This bill amends the state genetic privacy law by allowing health insurers to retain or disclose genetic information without written authorization if (1) the retention is for treatment, payment or…- state bill
- bill
- bill status enacted
- Oregon
- health insurance nondiscrimination
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Additional Resource
Minnesota 2012 State Bills (Minnesota 2012 HF 2967)
During the period in which residual newborn screening specimens is retained, the health department may use blood samples and test results for newborn screening program operations. Newborn screening…- state bill
- bill
- bill status enacted
- Minnesota
- Newborn screening